June 23, 2020

Dear Readers,

In case you missed it

I am happy to report that our fourth COVID-19 Virtual Community Meeting, titled “Managing Re-Entry, featuring CLL experts Drs. Mazyar Shadman and Deborah Stephens, Infectious Disease specialists Drs. Kimberly Hanson and Joshua Hill, Laboratory Scientist Dr. Susan Leclair, led by moderator Dr. Brian Koffman has been archived on the CLL Society website here.

Upcoming

And because the learning never stops here at the CLL Society, we are pleased to offer this upcoming webinar on the topic “MRD: What Should It Mean to Me?” Friday, August 14, 2020 featuring Dr. Anthony Mato.

Register here!

ASH 2019 Conference Coverage

During ASH 2019, Dr. John Pagel and Dr. Alexey Danilov discussed Dr. Danilov’s research into whether Pevonedistat, and possibly other targeted agents, might be effective in restoring some of the impaired t-cell function in CLL patients. Learn more here and view the interview.

Test Before Treat™

Stories from our readers highlight the importance of proper prognostic testing. Read here. Request a free bright red Test Before Treat™ reminder bracelet. Tell us how testing before treatment, or lack thereof, influenced your CLL management at support@cllsociety.org.

Sign up for the Alert

You are Alert! But do you know others who are not? Encourage all CLL patients to stay in the know by signing up for CLL Society weekly Alerts (published every Tuesday). Send a friend the link!

cllsociety.org/newsletter-sign-up/

Stay in touch.

Stay strong.

We are all in this together.

Patty Koffman
Co-Founder & Communications Director
CLL Society

CLL Society Support Group Meetings Coming Up!

CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in-person meetings.

Northeast Ohio CLL Patient Support Group – June 23 @ 7:00 pm

Portland CLL Support Group – June 24 @ 6:00 pm

New Orleans and Surrounding Areas CLL Support Group – June 24 @ 6:30 pm

Rochester NY CLL Support Group – June 24 @ 7:00 pm

Seattle and All Points North CLL Support Group – June 25 @ 6:00 pm

Denver CLL Patient Support Group – June 25 @ 6:30 pm

Nashville CLL Patient Support Group – June 27 @ 12:00 pm

Boston CLL Patient Support Group – June 27 @ 1:00 pm

San Diego CLL Society Support and Education Meeting – July 1 @ 4:00 pm

Long Island CLL Support Group – July 2 @ 7:00 pm

Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.

Leukemia & Lymphoma Society Meetings

Tuesday, July 7, 2020 at 6 PM CT – 8 PM CT

VIRTUAL – Join LLS for the Patient Education Program: Living Well with CLL: diagnosis, treatment and support with Dr. Jason Melear and clinical social worker Vanessa Pettijohn at Texas Oncology. Learn more and register here.