July 14, 2020

Dear Readers,

Important Replay

COVID-19 is prevalent now more than ever in the USA, and as we continue to take sensible actions to minimize our risk, please consider taking a second look at the CLL Society’s four archived COVID-19 Virtual Community Meetings, featuring expert panelists weighing in on this urgent topic to keep you in the know.

CLL Society’s Upcoming Webinar  

Please register for the upcoming CLL Society Webinar, MRD: What Should It Mean to Me? featuring Dr. Anthony Mato discussing the growing role of MRD testing and research in CLL management on Friday, August 14 at 12:30 PM ET / 11:30 AM CT / 10:30 AM MT / 9:30 AM PT. Learn more and register here.

Conference Coverage  

This week we once again take up the countdown of Dr. Koffman’s “Top 12 ASCO 2020 Abstracts,” exploring what we can learn from #s 9, 8 and 7.

Dr. Koffman’s ASCO 2020 Top 12 Picks

• #9  A study looking at the impact of premature venetoclax interruption or discontinuation on outcomes in relapsed and refractory CLL patients.
• #8  A study looking at the effect of adding ublituximab to ibrutinib on PFS, ORR, and MRD negativity in previously treated high-risk CLL patients.
• #7  A study looking at tolerability and durable responses of the PI3Kδ inhibitor ME-401 administered on an intermittent schedule in relapsed and refractory follicular lymphoma and other b-cell malignancies.

Ultra-V Clinical Trial Banner

This week’s clinical trial banner features the Ultra-V trial that offers a powerful triplet of therapies (Ublituximab and Umbralisib + venetoclax) that each work orthogonally, or in different ways, to manage the CLL, thus minimizing the chance of developing resistance. Open to CLL patients who need treatment.

We are your connection! 

During this turbulent time, the CLL Society has doubled-down on efforts to be your connection to other CLL patients and their caregivers through virtual CLL-specific Support Groups, and to remind you that if you are unable to see a CLL expert, you should apply to our Expert Access Program™  for a free, online telemedicine connection. Our CLL expert physician will evaluate your individual case and bring you credible, cutting-edge treatment information to assist you in advocating for your best possible care.

CLL Society goes Platinum

The CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.

Please Support the CLL Society 

The CLL Society is invested in your long life.

Please invest in the long life of the CLL Society by making a contribution.

Thank you!

We are all in this together.

Patty Koffman
Co-Founder & Communications Director
CLL Society

CLL Society Support Group Meetings Coming Up!

CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in-person meetings.

The Orange County CLL Support Group – July 14 @ 6:00 pm 

Portland CLL Support Group – July 15 @ 6:00 pm 

Denver CLL Patient Support Group – July 16 @ 6:30 pm 

Twin Cities CLL Support Group – July 16 @ 7:00 pm

New Jersey CLL Patient Support Group – July 16 @ 7:00 pm

Western North Carolina CLL Patient Support Group – July 18 @ 10:00 am

Central Florida CLL Support Group – July 18 @ 10:30 am

West LA CLL Support Group – July 18 @ 11:00 am 

Oberlin, OH, CLL Patient Support Group – July 18 @ 1:00 pm 

Washington DC-area CLL Patient Support Group – July 18 @ 3:00 pm

DFW – Dallas Area CLL Patient Support Group – July 19 @ 3:00 pm 

San Francisco area CLL Patient Support Group – July 19 @ 4:00 pm

City of Hope CLL Support Group – July 20 @ 7:00 pm 

Chicago CLL Support Group – July 21 @ 7:00 pm 

Rochester NY CLL Support Group – July 22 @ 7:00 pm 

Seattle and All Points North CLL Support Group – July 23 @ 6:00 pm

Nashville CLL Patient Support Group – July 25 @ 12:00 pm

Boston CLL Patient Support Group – July 25 @ 1:00 pm 

Northeast Ohio CLL Patient Support Group – July 28 @ 7:00 pm

New Orleans and Surrounding Areas CLL Support Group – July 29 @ 6:30 pm

Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.