Today we are living in a world that is dynamic and changing to a dizzying degree. Some of these changes give us a feeling of instability, but some bring advancements that are positively exciting.
Until now the standard way to measure response to therapy was to assess the depth of remission using routine laboratory tests, a physical exam, and imaging.
In our upcoming webinar, August 14, 2020 “MRD: What Should it Mean to Me?” Dr. Anthony Mato will be discussing how he and other researchers are reexamining this now that we have blood tests that can assess for Measurable (or Minimal) Residual Disease down to one CLL cell in 10,000 or one CLL cell in a sample of one million cells, depending on which test is used, with the promise that this may be more helpful in determining treatment decisions and prognosis.
Like so many advances in a hematologist’s toolkit, this new approach is welcomed, but the full extent of its role in guiding treatment is still under discussion.
Join the us for the upcoming CLL Society Webinar, “MRD: What Should It Mean to Me?” featuring Dr. Anthony Mato discussing the growing role of MRD testing and research in CLL management. Friday, August 14 at 12:30 PM ET / 11:30 AM CT / 10:30 AM MT / 9:30 AM PT. Learn more and register here.
Our Q2 Quarterly Newsletter the 2020 CLL Society Tribune is published and ready to be helpful to you!
Living Well with CLL: Staying Home? Returning to work? Not sure? Stressed about this? This issue of the CLL Society Tribune brings you the viewpoints of writers from our CLL community who are strong, articulate and coping with the challenges of the COVID-19 pandemic. We hope that you will delight in their spunk and resilience. We thank them for letting us into their worlds and for speaking with such lucidity.
Under Conference Coverage we can expand our understanding of bi-specific antibodies even more as we view the CLL Society’s ASH 2019 interview featuring Drs. John Pagel and Stephen Schuster discussing the latest research on this topic.
Did You Know outlines the Byzantine logic behind the nomenclature for monoclonal antibodies.
Your questions answered! Our CLL expert Dr. Rick Furman, Chief Medical Officer Dr. Brian Koffman, Laboratory Scientist Dr. Susan Leclair, and Pharmacist Tom Henry have been hard at work, possibly breaking a record here by generously answering over 100 patient questions.
Please take a moment to complete the Tribune Survey so that we can learn how to keep this publication helpful and relevant to your CLL journey.
Searching for Financial Assistance on our website has just gotten easier! Everything in one place. Check it out!
The CLL Society is invested in your long life.
Please invest in the long life of the CLL Society by supporting our work.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group meetings are moving to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in the link to the specific location below. Once it is safe again, we will resume in-person meetings.
Cincinnati CLL Patient Support Group – July 8 @ 6:00 pm
Salt Lake City CLL Support Group – July 8 @ 7:00 pm
Raleigh Area CLL Patient Support Group – July 8 @ 7:00 pm
Sacramento CLL Patient Support Group – July 9 @ 6:30 pm
Houston-area CLL Support Group – July 11 @ 10:00 am
Orlando CLL Support Group – July 11 @ 2:00 pm
Philadelphia CLL Patient Support Group – July 11 @ 2:00 pm
Atlanta Metro CLL Support Group – July 11 @ 3:00 pm
New York City CLL Support Group – July 12 @ 3:00 pm
The Orange County CLL Support Group – July 14 @ 6:00 pm
Portland CLL Support Group – July 15 @ 6:00 pm
Denver CLL Patient Support Group – July 16 @ 6:30 pm
Twin Cities CLL Support Group – July 16 @ 7:00 pm
New Jersey CLL Patient Support Group – July 16 @ 7:00 pm
Western North Carolina CLL Patient Support Group – July 18 @ 10:00 am
Central Florida CLL Support Group – July 18 @ 10:30 am
West LA CLL Support Group – July 18 @ 11:00 am
Oberlin, OH, CLL Patient Support Group – July 18 @ 1:00 pm
Washington DC-area CLL Patient Support Group – July 18 @ 3:00 pm
DFW – Dallas Area CLL Patient Support Group – July 19 @ 3:00 pm
San Francisco area CLL Patient Support Group – July 19 @ 4:00 pm
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
Leukemia & Lymphoma Society Meetings
Tuesday, July 7, 2020 at 6 PM CT – 8 PM CT
VIRTUAL – Join LLS for the Patient Education Program: Living Well with CLL: diagnosis, treatment and support with Dr. Jason Melear and clinical social worker Vanessa Pettijohn at Texas Oncology. Learn more and register here.