CLL Patient Surveys
Surveys are your chance to help the community that treats CLL to better understand what is important to the patient and the caregiver. Some are short. Some are long. You may even get paid for doing some of them!
CLL Society wants to hear from you. Part of our organization’s mission is to increase patient education and research. We need your support to increase the body of knowledge for patients and caregivers affected by CLL. Please see current surveys below that help us aggregate information on a variety of topics to inform our field and CLL Society, so we can better serve this community.
FEATURE
CLL Society Community Profile Questionnaire
As a valued member of our community, CLL Society is asking for your participation in completing a profile questionnaire.
All individuals who access the services of CLL Society are encouraged to complete the questionnaire as doing so will aid CLL Society and have benefits for you as well. Please note, a portion of the questionnaire is specifically intended to be answered by those living with CLL / SLL.
Other Research Opportunities
Share Your Experience with Discontinuing BTKi’s
CLL Society is looking for people with experience discontinuing treatment with a BTKi for the survey below. If you have stopped taking a BTKi (such as ibrutinib, acalabrutinib, or zanubrutinib) for CLL or SLL specifically for reasons other than disease progression (such as stopping for side effects, physician or personal preference with either the intent to never take it again or discontinuing for 3+ months) please share your experience through completing this survey. Participation in surveys and research from people like you helps to advance understanding of CLL and the patient journey. We appreciate everyone helping us make a difference for all current and future people affected by CLL or SLL. Complete the survey.
Lymphoma Coalition Global Patient Survey
Lymphoma Coalition, a worldwide network of patient organizations, has launched its 2024 Global Patient Survey on Lymphomas & CLL. CLL Society is supporting this initiative as a member organization, and we hope you will complete the survey. When people share their experiences, we can make an impact across the healthcare spectrum and bring the voices and values of patients to lymphoma care, research, and health policy. Complete the survey here
Paid Research Opportunities
Invivyd’s COVID-19 Prevention and Registry Study
If you have a condition that indicates you are immunocompromised, and you have received a COVID-19 booster vaccine in the last 6-7 weeks, or plan to receive a booster in the near future, you may be eligible for free antibody testing and the opportunity for future participation in COVID-19 prevention studies. Compensation includes a free post booster antibody test and $25 in the form of a virtual gift card. Learn more here.
Are You Undergoing Treatment for a Blood Cancer Diagnosis and Experiencing Poor Sleep?
Researchers at the Mays Cancer Center are seeking US-based adults diagnosed with blood cancer and experiencing sleep disturbance to participate in a 20-week remote study testing a digital wellness intervention. Participants in this study will be assigned to use one of two digital wellness apps 10 minutes per day over 8-weeks to determine if it can help improve sleep, immune function, and other psychological and emotional outcomes.
This study is completely remote (there are no in-person visits with the research team) and patients from across the USA are invited.
Participating in this research will help build knowledge about new ways to manage sleep problems in people diagnosed with blood cancer.
You may qualify for the study if you:
• Are over 18 and reside in the USA
• Have a blood cancer diagnosis and are currently receiving treatment
• Experience sleep disturbance, such as difficulty falling asleep, staying asleep, or poor quality of sleep
• Own a smartphone
• Are willing to complete the study procedures
Participation involves:
• One brief 30-minute virtual meeting with a research assistant
• Completing online surveys
• Providing three blood samples over the 20-week study at a lab close to you
• Tracking sleep using a small device and daily diary
• Using a wellness app for 10 minutes per day for 8-weeks
Participants who qualify and enroll in the study will be compensated at regular intervals, up to $100.
If you are interested in learning more or finding out if you are eligible, you can complete the screening survey.
You can also contact us by email at [email protected] or visit our study website: https://cancer.uthscsa.edu/heme-study
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