Our Q3 2020 MRD Special Edition of the CLL Society Tribune made its debut on Thursday, October 1. Let’s dive in and have a look around!
The availability of MRD testing, which can give a read on how much actual disease remains detectable (or not detectable) during or after treatment, has had profound impact, not only on determining future treatment, but on the psychology and emotional quality of life for some CLL patients. In addition to the Tribune, you can learn more at CLL Society’s website here.
The effect of this more precise information is palpable in the riveting articles written by 3 of our patients who have experienced uMRD: Stephen Feldman, the leader of our CLL Support Group that meets at City of Hope, Mark Hoffman, the leader of our San Diego Support Group, and 16-year CLL survivor, Keith Seagull. Please see the “NewsFlash” at the top of Keith’s article for uplifting news in our Living Well with CLL section.
Further broadening our sense of community are our “Ask the Experts” columns on the right-hand side of the newsletter, which reveal both common and esoteric questions across a broad spectrum of CLL topics. Spend some time here. We are filled with gratitude for the generous contributions of time and expertise from Drs. Furman, Koffman, Leclair, Ratner, and Pharmacist Tom Henry, making Smart Patients Get Smart Care™ attainable.
Dr. Koffman has worked with the MRD Collaborative to put together an MRD testing glossary to help you get your bearings.
Last Chance to Register! CLL Society’s First-Ever Virtual Global Patient Education Forum
This coming Saturday, Oct. 10 “THE BIG EVENT” – CLL patients are living longer! CLL treatments are better than ever. Let us help you front-load your knowledge. Don’t get the wrong treatment! Develop a strong strategy. Build a great healthcare team to support the best care for your CLL. Learn from these outstanding CLL experts: Drs. John Byrd, Matt Davids, Joe Flynn, Joe Fraietta, Ryan Jacobs, Neil Kay, Jose Leis, Anthony Mato, Sameer Parikh, Lindsey Roeker, and Adrian Wiestner. Moderated by Dr. Brian Koffman. Register now!
Got questions for our October 10 “THE BIG EVENT” experts?
Our CLL expert speakers are deeply invested in solving the challenges of CLL and bringing the answers to you. Email your questions to Support@cllsociety.org with the subject line “10/10 Forum Question” in advance of Saturday.
The CLL Society 2020 Patient Survey: MRD Testing & Limited Duration Therapy
Sharpen your pencils (or your typing fingers!) and tell us what you know or don’t know about MRD. Please complete our MRD & LD Survey here. This is how we find out how we can best tailor future MRD & LD learning for you. Thank you!
Tell us your thoughts on our Quarterly Tribune! Please take our brief Tribune Evaluation Survey here.
CLL Society Webinar “The Future of CAR-T Therapy: Can CAR-T Cure CLL?
Join CLL Society on Tuesday, November 17 at 2 PM ET for a webinar with Dr. Joseph A. Fraietta from UPenn. You would be hard-pressed to find a researcher with more personal experience and clinical expertise in CAR-T and other cellular therapies than Dr. Fraietta. Don’t miss this opportunity to be able to learn about the latest CAR-T research and to ask your questions of one of CAR-T’s most innovative pioneers. Learn more and register here.
Please Support the CLL Society, the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
Thank you and stay safe!
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.