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We are all in need of help at one time or another. This week let’s welcome springtime into our hearts and recognize that we CLL patients and caregivers have helping hands all around us. The CLL Society, our healthcare providers, friends and family, volunteers, scientists, researchers, and many others are all here to help us! Check out these links to some of the direct help that CLL Society provides: Expert Access™ Program, CLL-Specific Support Groups, Test Before Treat™, Charting Your Lab results, links to Financial Resources, and that’s just the beginning.
COVID-19 Virtual Community Meeting: Contagion, Variants, and Vaccines
Join us on Friday, March 26th (11:00 AM PT, 12:00 PM MT, 1:00 PM CT, and 2:00 PM ET) for CLL Society’s COVID-19 Virtual Community Meeting with CLL experts Drs. Steve Rosen and Alexey Danilov, infectious disease physician Dr. Sanjeet Dadwal, lab scientist Dr. Susan Leclair, and CLL Society’s own Dr. Brian Koffman, who will present the most up-to-date COVID-19 information and answer audience questions. Submit your questions to firstname.lastname@example.org by Wednesday, March 24th, or plan to ask them during the live event; register here!
For those who would like to do a little COVID-19 reading in advance of our March 26th Virtual Community Meeting, here are three helpful links:
- CLL Society’s Official Statement Concerning SARS-CoV-2 Vaccine in CLL Patients, updated 2/28/2021 and found here.
- Protection Against COVID-19: Are you confused about the difference between passive and active immunity and what these terms have to do with monoclonal antibodies and vaccines? Check out Dr. Koffman’s mini-lecture here.
- Fully Vaccinated? The CDC hopes you will continue behaving yourself! Learn why here.
ASH 2020: Dr. Richard Furman discusses selecting chronic lymphocytic leukemia (CLL) therapies during the COVID-19 pandemic. Learn more here.
March 21st marks three years since Dr. Brian Koffman, CLL Society’s EVP and CMO, received his genetically modified CAR-T cells. In his latest blog post, he reflects on the wild ride, the amazing disease control that has resulted, and the tremendous progress in cellular therapy that has occurred in the past 36 months. Read all about his journey here.
CAR-T Ed Forum: The Basic Science and Latest Data
Please join CLL Society for a two-hour event on Wednesday, April 21st (10:00 AM PT, 11:00 AM MT, 12:00 PM CT, and 1:00 PM ET) as we continue to strengthen your learning about CAR-T therapy. Dr. John Pagel will define CAR-T, explain how it works, and share where this treatment might be headed in the future. Dr. Tanya Siddiqi’s ongoing CAR-T clinical trial at the City of Hope National Medical Center is well known. She will be on-hand to present her most current data showing the success of CAR-T therapy in CLL, both with and without ibrutinib. Dr. Larry & Sharon Saltzman will share their CLL CAR-T journey from the doctor-turned-patient perspective and the caregiver’s point of view. Learn more and register here!
Cancer Care: CLL Society’s Patricia Koffman joins Drs. Adam Kittai, Lindsey Roeker, and Deborah Stephens for Cancer Care’s March 25th Update on CLL. Learn more here.
NCCN: CLL Society’s Dr. Brian Koffman joins Dr. Jennifer Brown for “Know What Your Doctors Know: Chronic Lymphocytic Leukemia (CLL)” April 21st & April 26th. Learn more here.
CLL Society Audience Survey
Final encore! CLL Society believes strongly in equitable access to quality education, support, and care. Our goal is to provide valuable resources and a supportive community to all CLL patients and caregivers during their journey. We have put together a brief survey in collaboration with graduate students from Indiana University to find out more about your experience with CLL Society. We value your feedback and would be grateful if you would complete the survey, here.
The PAN Foundation helps federally and commercially insured people living with life-threatening, chronic, and rare diseases with out-of-pocket costs for their prescribed medications. PAN’s chronic lymphocytic leukemia (CLL) patient assistance fund can provide up to $8,700 per year in financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with CLL treatment. Funds are available for CLL patients.
The LLS Susan Lang Pre CAR T-cell Therapy Travel Assistance program is available to CLL patients with significant financial need. The fund provides financial assistance to patients diagnosed with blood cancer who are being evaluated to receive CAR T-cell therapy within a clinical trial.
You can find out about both of these programs and other forms of financial assistance on our website here.
Please Support CLL Society
CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.