This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
This is the place to be on April 21st! Join us for CLL Society’s CAR-T Ed Forum: The Basic Science and Latest Data at 10:00 AM PT, 11:00 AM MT, 12:00 PM CT, and 1:00 PM ET. Respected by colleagues for their leadership in quality clinical trials and much beloved by their patients for the extraordinary clinical care they provide, Drs. John Pagel and Tanya Siddiqi bring their spirit of generosity and gift for teaching to help us strengthen our understanding about CAR-T therapy. CAR-T patient Dr. Larry Saltzman and his caregiver/wife Sharon, bring real-life experience to this event. We look forward to seeing you!
Richter’s Transformation remains one of the greatest unmet needs in CLL, but there is hope with a novel CAR-T therapy from Israel. Dr. John Pagel interviewed Dr. Arnon Nagler during ASH 2020 regarding his study which utilizes “fresh” CAR-T cells.
COVID-19 and Vaccines
Drs. Rick Furman and Brian Koffman discussed COVID-19 and Vaccines in Chronic Lymphocytic Leukemia (CLL) Patients, at the New York City CLL Society Support Group Meeting.
Help That You Need, When You Need It!
If you need help explaining to family and friends exactly why the CDC guidelines for those who are fully vaccinated against COVID-19 do not apply to chronic lymphocytic leukemia patients, please read CLL Society’s commentary that has been written with CLL patients and caregivers in mind.
On-Demand In Case You Missed It
Click here to watch CLL Society’s March 26th COVID-19 Virtual Community Meeting: Contagion, Variants, and Vaccines.
CAR-T Quick Links
CAR-T is a revolutionary treatment that uses our own cells to defeat CLL. For a basic overview of how it works and some tips on getting the treatment paid for, review this resource document on CAR-T Cell Therapy 101.
March 21st marked three years since Dr. Brian Koffman received his genetically modified CAR-T cells. Read about his three years of durable remission here.
Read about the CAR-T therapy trial at UCLA Health, and how it accomplished what years of other treatments could not for Laurie Adami, a non-Hodgkin’s Lymphoma survivor. You can also read about her original CAR-T storyand find out how CAR T-cell therapy did what years of other treatments could not.
If you need financial assistance to obtain CAR-T therapy, information about the LLS Susan Lang Pre CAR T-cell Therapy Program can be found here.
Join NCCN and CLL Society’s Dr. Brian Koffman with Dr. Jennifer Brown for Know What Your Doctors Know: Chronic Lymphocytic Leukemia on April 21st & April 26th. Click to learn more about the event and register.
On Thursday April 22nd at 9 AM ET, join CLL Society and PeerView in a jointly presented virtual event, Making Modern Treatment Choices in CLL Oncology Nurse Insights on the Patient Journey and the New Era of Care, in association with the 47th Annual ONS Congress. This program will use PeerView’s “Nursing Clinical Consults” format to illustrate the practical application of the latest evidence on targeted therapeutics to nursing care in CLL, including important toxicity management, dosing, and drug interactions. Visit our website to register and find out more information about the event.
Survey: How Do You Make Treatment Decisions?
There are a variety of ways in which CLL patients make decisions when considering treatment options. How would you best describe yours? Let us know here.
Patient Informed CLL Specific Research
Despite what many say, we know that CLL is not a solved problem. Please tell us what research you would join us in supporting as CLL Society embarks on directing and funding patient informed CLL specific research. Expect a 3-poll soon.
Please Support CLL Society
CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.