This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
We remind you to please continue your high standards for COVID-19 infection prevention despite the easing of safety precautions by the general population. Long-term cancer patients, such as those with CLL, are well-practiced in the art of staying vigilant. Stick with the winning course of action. You have our admiration!
Join CLL Society for our upcoming webinar, Getting Maximum Benefit from Doctor Appointments on Thursday, May 27th. Becky McAlpin, a Nurse Practitioner with many years of experience in clinical trials, will give examples of how the information you bring to your doctor appointments is critical for your healthcare provider to accurately evaluate the status of your disease and look for trends. Also, Steve Delesie will share as a caregiver how to succinctly organize the most relevant portions of the CLL medical history to help communicate the most pressing needs and questions to your healthcare provider.
Read Dr. Paul Barr’s ASH 2020 update on using the combination of umbralisib, ublituximab, and venetoclax for the treatment of CLL. Results indicate that uMRD can be reached after only 12 cycles of this therapy.
CLL Society in the News
CLL Society’s own Chief Medical Officer and EVP, Dr. Brian Koffman, was interviewed for an article published in Canada through the National Post’s family of newspapers. The reporter was researching the concerns of cancer patients related to Canada’s decision to delay (for sixteen weeks or more) the administration of the second COVID-19 vaccine for essentially all Canadians in order to get the vaccine into more people’s arms. Dr. Koffman shares some additional thoughts on the topic here and advises that this policy could have catastrophic consequences for some.
CLL Society’s Interest Poll for Funding a CLL-Specific Research Program
Despite advancements in the treatment landscape, we know that CLL is not a solved problem. In the past, CLL Society has served in a supportive capacity for other organizations that are funding blood cancer research. Now, CLL Society is dreaming big! We are considering the possibility of funding our own CLL-specific research program and would like to hear from you. Please click here to answer three short questions that will help us gain a better understanding of what areas of CLL research are most important to those we serve.
Survey: How Do You Make Treatment Decisions?
There are a variety of ways in which CLL patients make decisions when considering treatment options. How would you best describe yours? Let us know here.
Join NCCN, Dr. Jennifer Brown, and CLL Society’s Dr. Brian Koffman for Know What Your Doctors Know: Chronic Lymphocytic Leukemia on April 26th. Learn more and register.
Instant Replays On-Demand
If you missed CLL Society’s Ed Forum CAR-T: The Basic Science and Latest Data on April 21st, you can watch it here! Drs. John Pagel and Tanya Siddiqi strengthened our understanding of CAR-T and other promising CLL therapies. CAR-T patient Dr. Larry Saltzman, and his caregiver/wife Sharon, shared their real-life experience.
New! Patty Koffman reads the CAR-T Comic Book: The Amazing Transformation of CAR-T, here.
You can still view CLL Society’s March 26th COVID-19 Virtual Community Meeting: Contagion, Variants, and Vaccines. Infectious disease physician Dr. Sanjeet Dadwal, CLL experts Drs. Steven Rosen and Alexey Danilov, and lab scientist Dr. Susan Leclair brought us up to date on the evolving COVID challenge as it impacts CLL patients. Watch it here!
PeerView and CLL Society’s Making Modern Treatment Choices in CLL was recorded on April 22nd. We invite you to watch this web broadcast in association with the 47th Annual Oncology Nursing Society’s Congress, which highlighted important information on toxicity management, dosing, and drug interaction information and explored how nurses can be the cornerstone of the management team during an era when CLL care is being transformed by novel approaches based on BTK and BCL-2 inhibitors. CLL Society’s Bruce Wright (a military veteran) provided a patient video testimonial on the nurse-patient relationship and the key role of nurses as patient educators during the therapeutic journey. Please note, you will need to register and answer a short poll before accessing the on-demand video.
Help You Need, When You Need It!
Here are some helpful links to a few CLL Society programs that provide help when you need it.
Please Support CLL Society
CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.