Since it went live over five years ago, CLL Society has been primarily concerned with explaining the hard facts from peer-reviewed journals, major medical conferences, and recognized CLL experts.
If you browse through the approximately 1600 articles on our website, you will find that the vast preponderance deal with cold data about basic science and important research.
While we hope we are always patient-friendly in our reporting and education, we know that we can get pretty nerdy at times.
But that is not the whole story. You can also read on our pages many curated patient and caregiver narratives about compassion, faith, and hope or nontraditional approaches to healing.
This new section, CLL Society Editorials and Opinions, will stretch our catalog in a different direction with writings expressing opinions about everything from the best path forward for those with CLL, to how to improve clinical trials and overall healthcare access, to ensuring that all are getting their best possible care.
This will be the space for informed speculation about what early signals seen in small studies might mean for CLL patients-not just what the data are telling us now, but where we might be going next.
At times, it may become a home to controversy, or to trial balloons for novel research paths, or to roads to improved healthcare equity.
We hope it will be a safe place for vigorous debate on how data should be interpreted and acted upon.
We are fueled by the hard truth that CLL is not a solved problem. Well-informed, well-meaning experts have strong opinions about what is best for their patients that don’t always match up with how other equally well-informed, well-meaning experts come down on the same issues.
Many will be consulted here. Pros and cons will be argued.
Expect editorials by me and other members of our CLL network.
Patients and caregivers will be encouraged to express both their substantiated ideas and wildest hopes.
Comments will be posted and discussions will be encouraged.
It will be topical and lively. But most importantly, we hope it helps move the CLL community forward.
Everything here will still be curated and not everything offered will be published.
For the last 16 years, I have lived by my own CLL commandment: You will have to make life-changing decisions with incomplete knowledge and conflicting advice.
This new editorial and opinion section of the CLL website is where we will play volleyball with that conundrum!
Of course, articles in this section should not be relied upon as medical advice or even a source for proven medical facts. Rather, here you will find the opinions of the writers themselves, which will not necessarily be the opinions of the CLL Society.
More details coming, so stay tuned.
Stay strong. We are all in this together.
Brian Koffman. MDCM (retired) MS Ed
Co-Founder, Executive VP and Chief Medical Officer