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We are proud to offer a whole slew of educational opportunities that CLL patients and their caregivers can choose from to help get the best possible care for their CLL. Excellent guidance from last week’s webinar Getting Maximum Benefit from Doctor Appointments will help you organize the most relevant information you need to bring to your doctor appointments. Additionally, our upcoming June webinar Learning to Decode Your Blood Test Results for CLL will help you interpret what your lab results mean! Find links below to both webinars.
Learning to Decode Your Blood Test Results for CLLwill be held on Tuesday, June 29th at 10:00 AM PT, 11:00 AM MT, 12:00 PM CT and 1:00 PM ET. Do you ever look at your blood test results from the lab and feel like you are reading Latin? Or you see a result that is outside of the normal range and aren’t sure if you should be concerned? Join CLL Society and Dr. Susan Leclair for this valuable webinar. You will learn how to interpret your blood test results and gain a better understanding of why it is critical to be on top of tracking them in CLL.
Join CancerCare’s upcoming teleconference Coping with the Stresses of Caregiving When Your Loved One Has Chronic Lymphocytic Leukemia (CLL) on Thursday, June 3rd from 1:30 – 2:30 PM ET. CLL Society’s Communications Director Patty Koffman, CLL expert Dr. Adam Kittai, Nurse Practitioner Sharon Flynn, and Dr. Stewart Fleishman will be presenting and there will be excellent resources provided for caregivers of CLL patients. You can find this event and other upcoming events here.
Join us Monday, June 14th at 6:30 PM ET for a live web broadcast with PeerView. Curious about the role of BTK inhibitors, BCL-2 inhibitors, and other targeted therapies in CLL treatment? Can targeted combinations displace immunochemotherapy as a potentially curative option in good-risk patients? Register for Pushing Therapeutic Boundaries in CLL with Drs. Matthew Davids, Nitin Jain, and Deborah Stephens.
During ASH 2020, CLL Society’s President and Chair of the Board Steve Bloom interviewed CLL expert Dr. Alexey Danilov about the CLL comorbidity index (CLL-CI), which provides a retrospective look at the data that is useful for predicting survival and tolerance of ibrutinib in the presence of comorbidities. Comorbidity refers to the presence of two or more diseases or conditions in a patient at the same time, such as having CLL and high blood pressure. See what has been learned here.
COVID-19 Drs. Neil Kay and Alan Skarbnik weigh in on the question of SARS-CoV-2 antibody testing post-vaccination.
Call for Caregiver Stories
As a caregiver, myself, I have often felt that we might be the least visible, but one of the most critical, participants on the CLL patient’s care team. CLL Society is interested in better understanding the caregiver journey, so we invite you to tell us your story. Please submit your story to email@example.com.
LLS Financial Assistance Programs are open to CLL patients. These include the Urgent Needs Program and Co-Pay Assistance Program, which may help CLL patients cover out of pocket expenses for labs, scans, tests, insurance premiums, and co-pays, whether your are in watch and wait or active treatment. Learn more about these programs and other forms of assistance here.
During CLL Society’s May 27th webinar Getting Maximum Benefit from Doctor Appointments, Nurse Practitioner Beck McAlpin and CLL caregiver Steve Delesie emphasized that even though your health care team has thoroughly reviewed your records and planned for your visit long before you arrive, the information YOU bring to your appointment can dramatically affect the outcome. Check out their presentations, download helpful forms to fill out, take them with you, and be prepared!
Making Modern Treatment Choices in CLL: Oncology Nurse Insights on the Patient Journey and the New Era of Care. Hear how nurses play an important part in the management of CLL patients in PeerView’s on-demand video featuring CLL Society’s own military veteran Bruce Wright, Amy Goodrich, CRNP, Josie Montegaard, MSN, AGNP-BC, and Lisa Nodzon, Ph.D., ARNP, AOCNP presented at the recent ONS Congress.
Listen to The Mighty Podcast episode, Living with A Rare Cancer. In this episode, host Ashley Kristoff interviews CLL Society’s Support Group Director and 21-year CLL survivor Terry Evans, and patient advocate Michele Nadeem-Baker about their experiences with CLL, including their diagnosis, journey, and how each found a supportive community. There are lessons that we can only learn from fellow patients. Michele Nadeen-Baker and our own Terry Evans are among the best patient educators out there. Listen to their stories in this podcast.
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CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.