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Happy 70th Birthday to our Co-Founder, Chief Medical Officer, and 16-year CLL survivor, Dr. Brian Koffman. The principles Brian developed in order to reach this landmark birthday against overwhelming odds are the same ones he used to build the CLL Society and that we are sharing with you. Brian and the CLL Society remain committed to your long lives. Please help ensure the long life of the CLL Society with your donation celebrating Dr. Koffman and the nonprofit he leads as we continue to work on your behalf.
Our focus this week is on you and how CLL Society can help you to secure the best possible care for your CLL.
As we are heading into the sleepy days of summer, we give you permission to clear the worry and chaos of the pandemic year from your mind and refocus your attention on four easy steps you can take to help ensure you develop the strategies needed to advocate for the best possible care. CLL Society is here to help!
- Build a team. Regardless of your current disease status, we recommend that you put together a strong healthcare team long before you need their expertise, so they will be there for you when you need them. Is someone missing? Brush up on team building here.
- Do you ever lay awake worrying that you may not be receiving optimal care for your CLL? Reassess whether you should apply for CLL Society’s free online 2nd opinion from a CLL expert through our Expert Access™ Program. Studies have shown that CLL patients who see a CLL expert live longer than those who do not. So, stop worrying! Learn what a CLL expert has to say about your case. Apply here.
- Connect with others! Sign upto attend one of our many CLL Patient and Caregiver Support Groupsthat meet monthly across the US.
- And, finally, join us on June 29th to learn how to better comprehend your blood test results during our CLL Society Webinarwith lab scientist Dr. Susan Leclair. Read below for more information.
Learning to Decode Your Blood Test Results for CLL will be held on Tuesday, June 29th at 10:00 AM PT, 11:00 AM MT, 12:00 PM CT and 1:00 PM ET. Do you ever look at your blood test results from the lab and feel like you are reading Latin? Or you see a result that is outside of the normal range and aren’t sure if you should be concerned? Join CLL Society and Dr. Susan Leclair for this valuable webinar. You will learn how to interpret your blood test results and gain a better understanding of why it is critical to be on top of tracking them in CLL.
Meanwhile, check out these helpful CLL Society lab test links:
Curious about the role of BTK inhibitors, BCL-2 inhibitors, and other targeted therapies in CLL treatment? Can targeted combinations displace immunochemotherapy as a potentially curative option in good-risk patients? Watch the recorded webcast Pushing Therapeutic Boundaries in CLL brought to you by CLL Society and PeerView with expert speakers including Drs. Matthew Davids, Nitin Jain, and Deborah Stephens.
During ASH 2020, Dr. Paolo Ghia spoke about the benefits of individualized treatment plans for chronic lymphocytic leukemia. This interesting clinical trial individualizes who will be able to stop treatment and who will have an ongoing need for maintenance therapy.
In the article It’s Time to Focus on the CLL ‘Host’, Glenn Sabin writes how every CLL patient journey is unique, but perhaps none has been as unique as his. Glenn has twice knocked back his cancer and attributes his success to diet, lifestyle, and nutritional supplements. Learn how Glenn explains his natural approach to becoming an inhospitable host to CLL.
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CLL Society is the only CLL-specific, physician-curated public charity dedicated to meeting the unmet needs of CLL patients and their caregivers which holds the GuideStar Platinum Seal of Transparency.
We are all in this together.
Co-Founder & Communications Director
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.