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Because we are still in the midst of a pandemic with case numbers rising due to COVID-19 variants, everyone should know exactly what they should do in case of a positive test result. CLL Society has developed an easy way to assist you in formulating your COVID-19 plan. We created user-friendly checklists that will help you know what detailed steps you should take as a CLL patient before you get COVID-19, how to think through what will happen if you need to be quarantined in your home, and what to do should you ever receive confirmation of a positive test. View the documents to make your plan.
CLL Society Webinar
Join us on August 26th at 10 AM PT, 11 AM MT, 12 PM CT, 1 PM ET for the webinar Revisiting PI3K Inhibitors for the Treatment of CLL: Are They Living Up to Their Promise? Dr. Ian Flinn explains how PI3K inhibitors work, common side effects, and what role they might play in the future for treating CLL.
Blood Cancer Uncensored
Dr. Adrian Warnock is a physician with chronic lymphocytic leukemia and a strong advocate in the United Kingdom for his fellow CLL patients. His blog and website are well worth checking out! He recently wrote about research performed by Blood Cancer UK which found that four out of five blood cancer patients were never informed by their healthcare providers that they remain substantially unprotected from COVID-19, even after becoming fully vaccinated. This lack of awareness puts blood cancer patients in extremely vulnerable situations and may unknowingly expose them to unnecessary risks.
At CLL Society, we consistently advise our readers that the safest course of action is to not only become fully vaccinated but then continue to act as if you are unvaccinated. However, there are still many patients out there, that have not been given this critical message. Dr. Koffman shares a brief overview and provides a link to Dr. Warnock’s important article here.
ASH 2020: Our own Dr. Brian Koffman recently interviewed Dr. Lindsey Roeker, a hematologic oncologist at Memorial Sloan Kettering Cancer Center. They discussed new data looking at COVID-19 vaccine response in patients with CLL with a special focus on how various CLL treatments affect the response to the COVID-19 vaccines.
A Patient Story Sprinkled with Shakespeare!
Doreen Zetterlund, an actress, long-time CLL patient advocate, and member of a CLL Society Support Group, inspires us with her strategy to frontload her CLL knowledge to be certain that she will be well informed as to her best possible care, regardless of how her CLL might evolve. Enjoy her story, Shakespeare, Meet Leukemia,published by Cancer Health.
CancerCoach Live and CLL Society Joint Event
Join us for a one-hour online session, Navigating Treatment with BTK Inhibitors led by Dr. Matthew Davids, from the Dana-Farber Cancer Institute. This interactive program will take place on Friday, August 6th, at 3:00 PM ET. Hear a CLL patient’s perspective about the latest findings on long-term efficacy of BTK-inhibitors, side-effect management, and adopting healthy lifestyles to improve outcomes.
This educational activity is the first in a series specifically designed to help patients and caregivers understand the available treatment options for CLL across the continuum of care, learn about BTK-inhibitors, and how to confidently talk with doctors and other clinicians to align their goals and priorities for care. Send your questions to the expert panel.
City of Hope Event
City of Hope would like to invite you to its first Global Oncology Forum to discuss important COVID-19 related topics including the nature of the virus, epidemiology, vaccination, therapy for infection, emerging variants, and testing. This webinar is taking place on July 29th at 9:30 AM PT, 10:30 AM MT, 11:30 AM CT, 12:30 PM ET. Find this event and more on our upcoming events page.
Continuing medical education activities are required for healthcare providers to maintain their licensing. Rarely do we as patients gain access to their learning materials. CLL Society has partnered with Clinical Care Options to develop an educational activity for healthcare providers who treat patients with CLL. This program features expert insight commentaries, an Interactive Treatment Decision Support Tool, and a series of micro education modules. Not only will this education help improve CLL care for healthcare providers, but it can also help empower and engage patients to become informed participants in shared decision-making. Have a look around in the CLL sections. Explore at your own pace. Learn more about “Optimizing Decision-Making in CLL in an Era of Novel Agents,” and consider sharing this learning opportunity with your healthcare providers. We hope some of this content looks familiar to you!
Quick Links to Fundamental Webinars
In the mid-summer spirit, please enjoy three of our many helpful archived webinars to bolster your confidence in handling some of the challenges of CLL.
- If newly diagnosed, or just wanting a refresher, please visit Just Diagnosed: What Do I Need to Know?presented by Dr. Neil Kay.
- Getting Maximum Benefit from Doctor Appointmentsfeaturing nurse practitioner Becky McAlpin and caregiver Steve Delesie will help you to do just that!
- Learning to Decode Your Blood Test Results for CLLis an in-depth lecture about lab results, followed by audience Q&A with laboratory scientist Dr. Susan Leclair.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.