This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
Please keep top-of-mind that all of the pre-vaccine infection avoidance measures remain essential practice to help blood cancer patients avoid infection. Sadly, the passing of General Colin Powell this week brought the news that, despite being vaccinated, our former Secretary of State was unable to survive COVID-19. CLL Society continues to raise awareness by advocating for effective prophylaxis with protective anti-COVID antibodies to protect those, like the late Colin Powell, who have diminished ability to make effective antibodies on their own and are therefore less protected by the vaccine. See below as CLL Society presents the best information to-date on this subject in our upcoming webinar COVID-19: Are Monoclonal Antibodies What the CLL Community Has Been Waiting For?
The countdown of Dr. Brian Koffman’s Top 12 Picks from ASCO and EHA 2021 continues!
EHA 2021 Top Pick #9: Of special interest to treatment naïve/ watch & wait CLL patients. Ibrutinib treatment in the first line setting for patients with chronic lymphocytic leukemia; up to 7 years of follow-up in the RESONATE-2 Study.
The Letter from the Editor The Magnetic Appeal of Vaccination by Dr. Rick Furman is a must read article published in Clinical Advances in Hematology & Oncology, Issue 7 on July 2021. It elucidates the depth of vaccine hesitancy in some segments of the population.
Upcoming CLL Society Events
Our caregivers bring us priceless gifts. Their presence grounds us. They share our hope. They shoulder our burdens and help us stay the course. They are critical to our well-being, and sometimes, our survival. At one time, our caregivers were new to taking care of us, but acquired skills with practice. At CLL Society, we recognize that the skill of taking care of caregivers is an emerging field of study. Become inspired! Push the “refresh” button and attend our November 1st webinar Giving Care to the Caregiver with speaker Allison Applebaum.
In partnership with Huntsman Cancer Institute (HCI), CLL Society invites you to attend our virtual 5th Annual Patient & Caregiver Ed Forum on Tuesday, November 9th at 5 PM MT focused on chronic lymphocytic leukemia (CLL). Featured speakers Drs. Deborah Stephens, Harsh Shah, Boyu Hu, and Lindsey Fitzgerald will present the basics of CLL diagnosis, early management, clinical trials, treatment options, COVID-19 considerations for CLL patients, and strategies to become an effective self-advocate. CLL patient Doreen Zetterlund will present The Patient Experience: Becoming Your Own Project Manager.
Join CLL Society on December 2nd for COVID-19: Are Monoclonal Antibodies What the CLL Community Has Been Waiting For? While vaccines may be the best solution to the COVID-19 pandemic for the majority, CLL patients need an additional solution as vaccine response is variable and often impaired. Learn about monoclonal antibodies (mAbs) directed against the virus that caused COVID-19 that may be our best answer from Dr. Shahzad Mustafa, an immunology expert, and our own Dr. Brian Koffman and Robyn Brumble, RN.
In case you missed it, we recorded it for you! Watch CLL Society’s Ed Forum: The Right Tests at the Right Timeto learn how testing to guide treatment in all phases of CLL has never been better! Hear first-hand accounts from two CLL patients whose treatment regimens were radically changed by proper testing. Drs. Brian Hill and Ryan Jacobs explain bone marrow biopsies, CT scans, physical exams for lymph nodes and enlarged spleen, and MRD testing. Build your CLL test knowledge and engage more deeply in your CLL care.
Free Resource for CLL Patients
CLL Society and Bag It believe that CLL patients and caregivers should be empowered with information and resources as they navigate a cancer diagnosis. We invite you to order your free bag and binder today to help keep you organized. There is a CLL-specific information section and many additional resources. Learn more and order yours here.
Paid Survey Opportunity
Pillar Patient Advocates, LLC is interested in speaking with CLL patients who are treatment naïve (Watch & Wait) and have either been diagnosed within the last 18 months OR who expect to start treatment within the foreseeable future. This study involves participating in a 60 minute virtual interview to share your opinions. In appreciation, participants are paid $150 for their time and input. All information is kept confidential.
Global Leukemia Patient Experience Survey 2021
We invite you to participate in this survey about your diagnosis, care, and treatment of leukemia. The survey has been created to build a global picture of the experiences people with leukemia face. The purpose of this survey is to provide information to help understand the key issues, experiences, and unmet needs for leukemia patients. It is run by the Acute Leukemia Advocates Network (ALAN) in partnership with the CLL Advocates Network (CLLAN) and the CML Advocates Network (CMLAN).
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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