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The CLL Society Tribune gives its writers wide latitude in expressing their feelings and sharing their unique expertise. We welcome this refreshing dose of unrestricted musing, lively language, and useful, but somewhat esoteric, learning. Let us illuminate some of the highlights that this Third 2021 Issue of the CLL Society Tribune delivers.
Ask the Experts
This feature of our CLL Tribune might be considered the Dear Abby of CLL and COVID-19. From the comfort of our living rooms, we get a real life look at what is on the minds of others in our community. We hope you have luck here and find that someone has already asked and received good counsel for a worry that you have held for a long time.
Why Are Men Hiding?
You will likely chuckle as Peter Titlebaum shares his thoughts on why men do not usually reach out for help from a support group. Here’s an excerpt: “Did you ever watch a Charlie Brown cartoon classroom scene where the teacher speaks? All we comprehend is noise and no discernible words. This is what it is like when you talk to men about their feelings – they hear something, but they really are just waiting for you to get tired of talking to them!” Spoiler alert! He joined one.
CAR-T: A Success Story
CLL patient Paul Bildstein recounts his CAR-T journey, step-by-step, from entry into a CAR-T clinical trial, to the good news that at his 15-month checkup, he was still CLL-free!
Support Groups: In Sickness and In Health
Stephen Feldman explains that the nature of a support group is to create a safe space that can hold, absorb, and help its members process the full spectrum of experiences encountered as to learn to live with the reality of a CLL diagnosis.
It’s Back to School with Drs. Koffman and Leclair!
In Part 2 of Dr. Koffman’s series on immunity, we learn the differences between our innate and acquired immunities.
In Part 2 of Dr. Leclair’s introduction to immunity, we learn the ways that our immune system tries to protect us and reviews the specific defense system of the immune response.
Learning What Is Common As a Group
In Part 2 of Dr. Leclair’s break down of the fundamentals of statistics, the focus is on group commonalities.
During ASH 2020 and EHA 2021, our own Dr. Brian Koffman and Dr. Jennifer Woyach discussed the ongoing Phase I clinical trial testing the safety of MS-553 in relapsed/refractory CLL. Read Dr. Ann Liu’s summary and watch the interview.
Tell us your thoughts on this brief, reader survey regarding the COVID-19 pandemic and treatment decisions, mental health challenges, and taking medication.
Upcoming CLL Society Events
CLL Society Ed Forum: The Right Tests at the Right Time on Friday, October 15th at 11:00 AM PT and 2:00 PM ET. Join CLL Society for this important Ed Forum to learn the basics about testing across the span of your CLL journey, from the time of diagnosis, to before starting your first treatment, and prior to every subsequent treatment. Two patients will share stories.
CLL Society Webinar: Giving Care to the Caregiver on Monday, November 1st at 10 AM PT and 1:00 PM ET. Too often caregivers can feel invisible as the patients’ physical and emotional journey is the central story, and yet caregivers are vital in addressing challenges and providing support. Join CLL Society and Dr. Allison J. Applebaum to learn about the amount of time that caregivers dedicate to this role, the different types of stress and burden experienced by caregivers, and how to address these issues.
In Case You Missed It
We recorded it! Watch the replay of our September 24th COVID-19 Virtual Community Meeting: The Delta Variant and Staying Protected.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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