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This week we lead with a patient story podcast featuring Mr. Bob Levis, who currently serves on CLL Society’s Board of Directors. Bob was diagnosed with chronic lymphocytic leukemia (CLL) while on an executive business assignment in Singapore in 2002. Following several years of treatments involving remissions and relapses, Bob’s CLL became more aggressive. In 2013, running out of treatment options, he enrolled in an early CAR-T clinical trial with Dr. Carl June at Penn Medicine in Philadelphia. Bob shares his remarkable journey with CLL and cellular therapies, as well as his important work with the CLL Society, on the podcast Chronic Lymphocytic Leukemia: A Patient’s Perspective. Bob is an excellent role model for CLL Society’s motto: Smart Patients Get Smart Care™.
End of Year Giving
As autumn is a good time to plan for end-of-year charitable donations, we wanted to let our readers know that CLL Society is extremely grateful for your past generous support of our programs and confidence in our work. Your kindness has brought a world of good to our CLL community.
CLL Society’s New Mailing Address
1454 Melrose Ave
Chula Vista, CA 91911
Donations of Appreciated Stock
There are many ways that donors can support CLL Society’s work, which we will be sharing over the coming weeks. This week, we would like to announce that CLL Society can receive gifts of appreciated stock. For procedural details, please reach out to Patty Koffman at firstname.lastname@example.org.
Conference Coverage: Top 12 Picks from ASCO/EHA
The countdown continues with ASCO 2021 Top Pick #8: The first-in-human study of lisaftoclax (APG-2575), a novel BCL-2 inhibitor (BCL-2i). This study will be of special interest to patients with relapsed/refractory (R/R) CLL and other hematologic malignancies.
Upcoming CLL Society Events
In partnership with Huntsman Cancer Institute (HCI), CLL Society invites you to attend our virtual 5th Annual Patient & Caregiver Ed Forum on Tuesday, November 9th at 5 PM MT focused on chronic lymphocytic leukemia (CLL). Featured speakers Drs. Deborah Stephens, Harsh Shah, Boyu Hu, and Lindsey Fitzgerald will present the basics of CLL diagnosis, early management, clinical trials, treatment options, COVID-19 considerations for CLL patients, and strategies to become an effective self-advocate. CLL patient Doreen Zetterlund will present The Patient Experience: Becoming Your Own Project Manager.
Join CLL Society on December 2nd for COVID-19: Are Monoclonal Antibodies What the CLL Community Has Been Waiting For? While vaccines may be the best solution to the COVID-19 pandemic for the majority, CLL patients need additional options, as their vaccine response is variable and often impaired. Register today to learn about monoclonal antibodies (mAbs) directed against the virus that causes COVID-19 from immunology expert Dr. Shahzad Mustafa, RN Robyn Brumble, and our own Dr. Brian Koffman.
CLL Society in the News
CLL Society’s Dr. Brian Koffman is featured in JAMA (Journal of the American Medical Association) in the article Monoclonal Antibodies for COVID-19 Pre-exposure Prophylaxis Can’t Come Fast Enough for Some People.
In case you missed our November 1st Webinar: Giving Care to the Caregiver with Dr. Allison Applebaum, we saved it for you! Dr. Applebaum is the breath of fresh air caregivers have been waiting for. Studying caregivers with the penetrating eye of a scientist, Dr. Applebaum’s work affirms the seriousness of the job, the range of emotions and depth of the fatigue caregivers feel, the stress of setbacks, the exhilaration of seeing the patient improve, and much more. Watch the on-demand recording here.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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