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Giving Tuesday is Coming Next Week, November 30th
Each year, an estimated 20,000 individuals are diagnosed with chronic lymphocytic leukemia/small lymphocytic lymphoma. With this rare cancer, finding and understanding appropriate treatment options does not come easily. We know it is the unfortunate reality that too many CLL/SLL patients are left unaware that they are on a treatment path that is likely inadequate at addressing their cancer and could even do more harm to the body.
This Giving Tuesday, CLL Society has set a goal of raising $20,000 to provide patients with free educational and support resources, because no one should be uninformed when it comes to their cancer diagnosis. Together, we have the strength to empower CLL patients to get their best care.
Donate now and provide life changing resources to CLL patients that enable them to find the right treatment and increase their quality of life.
Be sure to follow us on Facebook and Twitter for updates.
CLL Society’s New Mailing Address
Don’t forget, CLL Society has a new mailing address! Please make note of it and address all correspondence there. If your financial institution mails your charitable donations for you, please share CLL Society’s new address with them. Thank you!
1454 Melrose Ave
Chula Vista, CA 91911
Join us on Thursday, December 2nd at 9:30 AM PT and 12:30 PM ET for the webinar COVID-19: Are Monoclonal Antibodies What the CLL Community Has Been Waiting For? While vaccines may be the best solution to the COVID-19 pandemic for the majority, CLL patients need an additional solution as vaccine response is variable and often impaired. Learn about monoclonal antibodies (mAbs) directed against the virus that causes COVID-19, which may be our best answer from Dr. Shahzad Mustafa, an immunology expert, and CLL Society’s own Dr. Brian Koffman and Robyn Brumble, RN.
Pfizer Seeks Emergency Use Authorization for Novel COVID-19 Oral Antiviral Candidate
PAXLOVID™ (PF-07321332; ritonavir) is an oral antiviral therapy that was just submitted to the FDA for EUA (Emergency Use Authorization) approval. The promise of a pill that nine out of ten times stops COVID-19 from progressing would make the world feel much safer for many CLL/SLL patients. Read here. Below is more on the exciting data.
Pfizer Antiviral Slashes COVID-19 Hospitalizations
One of the most most recent promising developments in COVID-19 management comes from Pfizer who has developed a pill that has shown to be 89% effective at reducing the risk of hospitalization or death from COVID-19 in high-risk patients within 3 days of symptom onset. Read more in Dr. Koffman’s write-up.
Holiday Cheer Without the Fear for CLL/SLL Patients
The special closeness of the holidays can be a source of joy, but also of significant risk during the pandemic for CLL/SLL patients. CLL Society is sharing Dr. Ed Ratner’s letter to help explain to family and friends about our continued vulnerability and to ask for their understanding if we say no to invitations or insist on mask wearing and/ or social distancing when gathering. Please feel free to use and personalize this letter, here.
The countdown continues as we present Dr. Brian Koffman’s EHA 2021 Top Pick #5: Pirtobrutinib (Loxo-305), A Next Generation, Highly Selective, Non-Covalent BTK Inhibitor in Previously Treated CLL/SLL: Results from the Phase ½ Bruin Study. This research is of special interest to relapsed and refractory patients.
Continuing our celebration of National Families Caregiver Month, we are delighted to share Caregiver LifeHacks: CLL Edition Podcast. CLL Society and OffScrip Health partnered to produce this three-episode podcast series providing a home for the often-unspoken thoughts and feelings of the caregiver experience. In an intimate roundtable format, caregivers share their high points, their low points and everything in between. Sometimes sad, mostly funny, always real emotions and authentic experiences.
Patient Advice – Paying it Forward
CLL Society is excited to share CLL/SLL patients giving peer-to-peer advice about what they wish they had known early on in their journey. Jillian York shares her experience with the Expert Access™ Program and the importance of having a CLL specialist on your team. Watch here.
Support Group Member Survey
Help us continue to bring you CLL Society Support Groups as a resource for education and support by completing our end-of-the-year survey. If you attend one of our support groups virtually, we want to hear from you! Please complete our survey here.
In case you missed them, recent CLL Society on-demand events:
- Recorded on November 9th: 5th Annual Patient & Caregiver Forum
- Recorded on November 1st: Giving Care to the Caregiver
- Recorded on October 15th: The Right Tests at the Right Time
- Recorded on September 24th: COVID-19 Virtual Community Meeting: The Delta Variant & Staying Protected
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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