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Veterans Day is Thursday, November 11th
To our Military Veterans: Thank You for Your Service! In appreciation of our military veterans’ service to our country, we provide the on-demand webinar Veterans with CLL: How to Get the Benefits and Care You Deserve, featuring Dr. Ed Ratner, Associate Director of the Minneapolis VA Geriatrics Research Education Clinical Center and Bruce Wright, Chair of CLL Society’s Patient Advisory Board and Senior Support Group Advisor, as they engage in a helpful discussion to aid veterans in advocating for their best possible care from the VA for their CLL. Topics include the recommendation to enlist the aid of a veteran service officer, explanation of “presumptive illness lists”, especially related to Agent Orange and other toxic exposures, CLL drugs available from the VA, VBA benefits, a discussion of service connection disability compensation, other service-connected disabilities, including hearing loss, plus a reminder to have your service record include toxic exposures data. Bruce is one of the original CLL Society Senior Support Group Advisors who helped establish and support several CLL Society Support Groups across the country. Bruce has personally helped over 87 veterans with service-related disabilities obtain the benefits that they have earned and deserve. We offer this webinar with gratitude to our veterans.
National Caregiver Month
As November is National Caregiver Month, CLL Society wants to recognize all the caregivers who play such an important role in their loved one’s health and well-being. In celebration of National Caregiver Month, we would like to share Kate’s story. She is a developmental biologist and was a PhD candidate when her father was diagnosed with CLL. Her elegant write-up brings into view how very differently family members process and adjust to the CLL journey in support of the patient.
If you weren’t able to watch it live, please check out the on-demand replay of our recent webinar Giving Care to the Caregiver.
Don’t miss the 5th Annual Patient & Caregiver Ed Forum taking place today, November 9th at 5 – 7 PM MT. This event is produced in partnership with Huntsman Cancer Institute (HCI) and CLL Society.. Featured speakers include Drs. Deborah Stephens, Harsh Shah, Boyu Hu, and Lindsey Fitzgerald, who will present the basics of CLL diagnosis, early management, clinical trials, treatment options, and COVID-19 considerations for CLL patients. CLL patient advocate Doreen Zetterlund will present on effective strategies for becoming your own self-advocate.
CLL Society webinar COVID-19: Are Monoclonal Antibodies What the CLL Community Has Been Waiting For? is taking place on Thursday, December 2nd at 9:30 AM PT / 12:30 PM ET. While vaccines may be the best solution to the COVID-19 pandemic for the majority, CLL patients need an additional solution as vaccine response is variable and often impaired. Learn about monoclonal antibodies (mAbs) directed against the virus that causes COVID-19, which may be our best answer from Dr. Shahzad Mustafa, an immunology expert, and CLL Society’s own Dr. Brian Koffman and Robyn Brumble, RN.
Top 12 Picks from ASCO/EHA The countdown continues with EHA 2021 Top Pick #7: Long Term Results of a Phase I/Ib Study of Ibrutinib in Combination with Umbralisib in Patients with Relapsed/Refractory (R/R) CLL (Chronic Lymphocytic Leukemia) or MCL (Mantle Cell Lymphoma).
CLL Society in the News: COVID-19
Dr. Brian Koffman has been very public on TV and in print about the importance of monoclonal antibodies in protecting CLL/SLL patients from COVID-19. Find the news and opinion articles here.
Special Article: COVID-19 Brought Reduction in Critical Routine Screenings
Dr. Brian Koffman discusses his findings on changes to CLL care in this video produced by the Video Journal of Hematological Oncology during the recent International Workshop on CLL (iwCLL) Virtual Conference. In addition to discussing the positives and negatives of a switch to appointments being virtual, Dr. Koffman sounds the alarm on the reductions in screenings for secondary cancers and monitoring of comorbidities as risks to the long-term well-being of CLL patients.
Clinical Trial of Special Interest to High-Risk, Treatment Naïve Patients
In this recent interview, our own Dr. Brian Koffman spoke with Drs. Neil Kay and Sameer Parikh of the Mayo Clinic in Rochester, MN to learn why early-stage patients usually do not receive treatment and how that paradigm may be changing with the availability of new targeted therapies and better prognostic markers.
End of Year Giving
As autumn is a good time to plan end-of-year charitable donations, we wanted to remind our readers that CLL Society is extremely grateful for your past generous support of our programs and confidence in our work. Your kindness has brought a world of good to our CLL community.
CLL Society’s New Mailing Address
1454 Melrose Ave
Chula Vista, CA 91911
Donations of Appreciated Stock
There are many ways that donors can support CLL Society’s work. We would like to send a reminder that CLL Society can receive gifts of appreciated stock. For procedural details, please reach out to Patty Koffman at email@example.com.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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