This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
As 2021 winds down, we are happy to share the BIG, BIG NEWS we have been hoping for.
FDA Approval of Monoclonal Antibodies for Pre-exposure Prevention of COVID-19
FDA authorizes new, long-acting monoclonal antibodies (AZD7442 or EVUSHELD) for pre-exposure prevention of COVID-19 in certain individuals. CLL Society worked hard to ensure that those “certain individuals” with access to this passive immunity were the most vulnerable patients, namely the immunocompromised. This has the potential to change everything and give us the freedom already enjoyed by those who are vaccinated and have a normal immune system. Dr. Brian Koffman’s write-up and FDA news can be found here. If these shots become available later this month, what a Christmas present that would be!
ASH 2021 is just wrapping up in Atlanta, GA and CLL Society has been on the scene (virtually) throughout. Below are some hot-off-the-press items to tide you over until our new video interviews and articles roll out. Watch Dr. Brian Koffman’s Daily Updates below:
Dr. Koffman’s Top 12 Picks countdown continues withEHA 2021 Top Pick #2: The early result of the clever IMPROVE trial with its complicated design was presented at the 2021 European Hematology Association Virtual Congress, (EHA 2021) by Dr. Scarfò and her colleagues from Milan, Italy. The design of this trial was to use as much medication as necessary but as little as possible to get relapsed/refractory (R/R) chronic lymphocytic leukemia patients to undetectable measurable (minimal) residual disease (uMRD) so they can stop therapy.
CLL Society has been working with the Association of Community Cancer Centers (ACCC) to survey patients with a diagnosis of CLL to gain a better understanding of how patients and their healthcare teams arrive at decisions when it comes to choosing a new CLL drug therapy. The goal of this project is to identify gaps and disparities between patients and healthcare providers to improve overall care for patients with CLL. Please spend a few minutes filling out the survey.
In this article, Jill Gollinger shares how, as a CLL patient, she obtained anti-COVID monoclonal antibodies through a compassionate use program to prevent infections. For anyone immunocompromised, knowing where to get monoclonal antibody infusion treatments is a must as a precautionary measure in view of the risk of contracting COVID-19. Always call ahead to the facility to confirm availability. Supplies can be erratic.
Patient Advice – Paying it Forward
Jolianne Jones is a CLL/SLL patient and her advice for those early in their journey is to ask questions, join a support group, and become your own advocate. She is now a strong participant in her treatment plan and a great role model for all of us. Watch here.
Holiday Cheer Without the Fear for CLL/SLL Patients
The special closeness of the holidays can be a source of joy, but also of significant risk during the pandemic for CLL/SLL patients. CLL Society is sharing Dr. Ed Ratner’s letter to help explain to family and friends about our continued vulnerability and to ask for their understanding if we say no to invitations or insist on mask wearing and/or social distancing when gathering. Please feel free to use and personalize this letter, here.
COVID-19 Action Plan
If you haven’t already, review and complete CLL Society’s pre and post-exposure COVID-19 Action Plan so you are prepared for anything.
Please Support CLL Society
December is halfway over and you may be thinking about making your yearend gifts. You are a key player in helping CLL/SLL cancer patients get connected to the care they need to live a longer, healthier life. Your gift matters. You can donate directly to CLL Society or make arrangements to give through your IRA or Donor Advised Fund.
CLL Society’s Updated Mailing Address:
1454 Melrose Ave
Chula Vista, CA 91911
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.
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