This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
All of us here at CLL Society wish you and yours the happiest of holidays and good health in the New Year. Please take some time to slow down, put worry aside, and reconnect with family and friends, especially those who might be alone at this time of year. Please remain observant of all COVID-19 avoidance recommendations and familiarize yourself with our COVID-19 Action Plan.
Here is some straight talk from Dr. Koffman regarding what we know and don’t know about the continuing COVID-19 pandemic.
Getting Personal with CLL/SLL, COVID-19, Vaccines, Monoclonal Antibodies, Anti-Virals, Omicron and Living with Uncertainty
Life’s lessons are what you get when you don’t get what you want. As an immunocompromised chronic lymphocytic leukemia patient, I wanted certainty that I could reengage with the world without playing Russian roulette with a virus. It seemed tantalizingly close to becoming my reality. Now it seems it might be less sure with the emergence of the Omicron strain. Read here.
ASH 2021 just wrapped up in Atlanta, GA and CLL Society has been on the scene (virtually) throughout. Below are some hot-off-the-press items to tide you over until our new video interviews and articles roll out. Watch Dr. Brian Koffman’s Daily Updates below:
Dr. Koffman’s Top 12 Picks from ASCO and EHA 2021 continues. Here is ASCO 2021 Top Pick #1: First Results of a Head-To-Head Trial of Acalabrutinib Versus Ibrutinib in Previously Treated Chronic Lymphocytic Leukemia Patients.
ASCO 2021: Dr. Matthew Davids discusses the first head-to-head comparison of ibrutinib and acalabrutinib. Read more and watch the interview here.
2021 Fourth Quarter CLL Society Tribune
In this issue of the CLL Society Tribune we are inviting you into the minds and hearts of three CLL caregivers. Each of our caregiver writers are family members of the person for whom they care. We thank them for sharing their stories. We round out this issue with caregiver statistics shared by Dr. Allison J. Applebaum, results of CLL Society’s Ask & Tell Patient & Caregiver survey, fascinating facts from Part 3 and Part 4 of our series on immunity, as well as a nice write-up by pharmacist Tom Henry of our ASH 2020 interview with Dr. Matthew S. Davids regarding his clinical trial using of acalabrutinib plus venetoclax plus obinutuzumab (AVO) for CLL.
CLL Society and OffScrip Health partnered to produce Caregiver LifeHacks: CLL Edition Podcast, a three-episode podcast series providing a home for the often-unspoken thoughts and feelings of the caregiver experience. In an intimate roundtable format, caregivers share their high points, their low points and everything in between. Sometimes sad, mostly funny, always real emotions and authentic experiences.
Patient Advice – Paying it Forward
Tammi Garrett has CLL and her advice for those early in their journey is to get a second opinion, do your own research, and understand the importance of Test Before Treat™. CLL Society is committed to getting the word out about the importance of predictive testing. Please find our educational information here. Watch Tammi’s video here.
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.