This content was current as of the date it was released. In science and medicine, information is constantly changing and may become out-of-date as new data emerge.
New Year! New Newsletter? It’s true. Beginning January 4, 2022, we are debuting our new weekly newsletter CLL Society: This Week. On point. Streamlined and clean.
Meanwhile, I will be stepping away from writing the “Dear Readers” column and other communications management tasks to devote my fulltime efforts exclusively to the upcoming launch of our redesigned website. Stay tuned.
Please feel free to keep in touch with me at firstname.lastname@example.org
It’s not too late to make an end-of-year donation! The CLL Society is a 501(c)3 nonprofit organization devoted to meeting the unmet needs of CLL/SLL patients and their caregivers. CLL Society is invested in your long life. Please invest in the long life of the CLL Society. Your kindness makes a world of difference! Donate here.
CLL Society CAR-T Brochure
CAR-T therapy is a revolutionary therapy that trains the patient’s own cells to attack their CLL/SLL. The science can be somewhat complicated and advanced, but the results can be amazing. CLL Society developed an easy-to-understand CAR-T brochure that can be viewed in a digital flipbook format here.
There’s a New Drug to Prevent COVID-19, But There Won’t Be Enough
EVUSHELD is a new drug to prevent COVID-19, but there won’t be nearly enough for Americans who are eligible, including CLL/SLL patients. Learn more from this CNN article, linked here.
UPDATE: Getting Personal with CLL/SLL
In order to reflect the newest authorizations and the latest Omicron data, Dr. Brian Koffman has updated his article on COVID-19, Vaccines, Monoclonal Antibodies, Anti-Virals, Omicron, and Living with Uncertainty. Read here.
Sad News: Prominent CLL Expert Dr. Coutre Dies of Complications of COVID-19
The CLL community lost one of its greats last month with the passing of Dr. Steven Coutre from complications of his own CLL and COVID-19. Read here.
Getting Older and Getting Better
Sixty may be the new thirty, and 105 may be the new eighty! Dr. Brian Koffman found a couple of fun and inspiring articles that can put us in a strong and inspired mindset for New Year planning. A 64-year-old golfer shoots 63 under par… a 105-year-old Louisiana woman becomes the first of her age to run 500 meters! Put a Post-It note on your computer right now and keep your aspirations for the New Year close at hand. There are lots of ways to continue to thrive with our CLL. Read here.
EHA 2021: Dr. Jennifer Woyach on Two Clinical Trials that are Currently Recruiting Patients with Chronic Lymphocytic Leukemia (CLL). Dr. Koffman interviewed Dr. Jennifer Woyach during (virtual) EHA 2021 regarding two currently recruiting clinical trials. The EVOLVE CLL/SLL study is designed to answer the question: Does the addition of venetoclax to ibrutinib and obinutuzumab prevent chronic lymphocytic leukemia from returning? This study is of special interest to untreated older CLL/SLL patients. The second study discussed is designed to answer the question: Does starting treatment earlier (before symptoms start) prolong survival? This trial is of special interest to high-risk treatment naïve (TN) CLL/SLL patients.
Patient Advice – Paying it Forward
Bruce Wright has CLL and his advice for those early in their journey is to learn all you can about your disease, as each of us are different within the diagnosis of CLL, feel empowered to change doctors if you are not getting what you need, and be open to clinical trials, which provide new medicines and treatments. Watch Bruce’s video here.
ACCC Survey: $20 Amazon Gift Card Available for the First 100 Respondents
CLL Society has been working with the Association of Community Cancer Centers (ACCC) to survey patients with a diagnosis of CLL to gain a better understanding of how patients and their healthcare teams arrive at decisions when it comes to choosing a new CLL drug therapy. The goal of this project is to identify gaps and disparities between patients and healthcare providers to improve overall care for patients with CLL. Please spend a few minutes filling out the survey.
Big Help When You Need It
- CLL Patient & Caregiver Support Groups– Don’t spend another month alone!
- Expert Access™ Program– Have a diagnosis of CLL? Live in the United States? Not in the care of a CLL expert? You qualify for a free, 2nd opinion virtual consult with a CLL expert!
- COVID-19 Action Plan
- Susan Lang Pre-CAR-T Travel Assistance Program
CLL Society Support Group Meetings Coming Up!
CLL Society Support Group meetings have moved to a virtual platform for most locations due to the threat of coronavirus. Support group members will receive an invitation to register for the meeting from the support group facilitator. If you are new to the group, please contact the RSVP email for the Support Group in your region. Once it is safe again, we will resume in-person meetings.
Visit the individual event listings on our website for the most up-to-date information on all CLL Society Support Group meetings.