Throughout my life I have always been a very healthy woman, very seldom going to a doctor for even a routine checkup. My mom, dad and grandparents all lived into their eighties and nineties. I guess I could say I came from a very good gene pool! There was
By Stephen Feldman – Patient I was diagnosed with CLL in the spring of 2014. My relationship to my CLL, however, dates back over 30 years when, at the age of 23, I sustained a spinal cord injury that resulted in complete paralysis. What could possibly connect the two?
By Mark Hoffman – Patient This is the story of how I got to the treatment that was most likely by far the best for my genetics. I was first diagnosed in January 2016. I was diagnosed by a general hematologist and he put me on Watch and Wait.
By Bob Barton – Patient This is a follow-up to my previous article that was published last November that chronicled my first 30 days on ibrutinib. If you haven’t read it, you can find it here. To recap, I started taking Ibrutinib on July 16, 2016 when my CLL
When my regular cholesterol blood tests came back in November 2015 with a slightly elevated Absolute Lymph Count (ALC) of 6.53 (vs range of 2.3-3.6), my primary care physician suggested that I take it again in December. When it was still above normal, he suggested I meet with a
By Nancy O’Brien Simpson – Patient The year was 2005, and I was a psychotherapist who had the world by the tail. A gorgeous family, an amazing home, a stellar career, fun friends. And, I also had a lump on my neck. Then I asked my PC about it
By Jennifer Woolf – Patient My local oncologist was both urgent and firm in telling me that I needed to begin treatment for CLL immediately. I hesitated. “You owe it to your family,” he said. I continued to question him. “How can you do this to your children?” he
By Derek Caine – Patient In the autumn of 2003, I saw a picture of myself at a party and noticed a swelling on my neck. I saw my GP and he thought it might have something to do with blocked saliva ducts so he made an appointment for