Five Survey Opportunities Available Below!
Opportunity for CLL Patients with Treatment Experience
Pillar Patient Advocates is a private patient advocacy firm assisting two market research firms with upcoming studies for CLL patients. Details about each study are below:
- We are looking to include 29 CLL patients who have treatment experience in a two-part study. The goal of this research is to gain a better understanding of patients’ opinions and experiences. Participants will be asked to complete a short survey in advance of the 75 minute virtual interview. In appreciation, participants are paid $165 for their time and input.
- We are also looking to include 15 patients currently on a 2nd or 3rd line of treatment in a three-part study. Participants will complete a 60 minute virtual interview, and then a 45 minute video-task using a smartphone app. A week later, they will complete a second 60 minute virtual interview. In appreciation participants are paid $350.
If you’re interested in participating in either or both studies, please email Lindsay Wetzel at LWetzel@PillarAdvocates.com with the subject line: I’m Interested – CLL Society. If you are accepted, please let CLL Society know by emailing Support@cllsociety.org with the subject line: Accepted – Pillar Study.
Opportunity for CLL Patients and Caregivers Who Have Experience with Treatment
The organization Find a Cure Panel (FACP) specializes in patient research for rare and serious diseases and they have some an upcoming patient and caregiver research for CLL. To qualify you or your loved one must have received treatment for CLL. If you/your loved one are watch and wait, you will NOT qualify.
The participation will include one 30-minute confidential and anonymous online survey. You will receive a customized online link to answer the posted questions. FACP will compensate participants $100 for completing the survey.
If you’re interested in participating, please contact email@example.com and reference FACP/CLLS. If you are accepted, please let CLL Society know by emailing Support@cllsociety.org with the subject line: Accepted – FACP Survey.
Opportunity for CLL Patients
A pharmaceutical company is currently looking to recruit patients diagnosed with CLL who are willing to participate in a virtual interview. The goal of this research is to gain a better understanding of the symptoms and daily-life impacts for patients living with CLL. The interview will take place in two parts. In the first part, we will ask the patient open-ended questions to help us understand what it is like to live with CLL. In the second part, we will ask the patient to complete a questionnaire. The goal of this portion is to ensure that our questionnaires are relevant. After this, the patient will have the opportunity to share any additional information if they would like. The total interview will take approximately 60-90 minutes in total, and the patient will receive compensation of $188.
If you’re interested in participating, please email Teya Lovell at firstname.lastname@example.org with the subject line: I’m Interested – CLL Society. If you are accepted, please let CLL Society know by emailing Support@cllsociety.org with the subject line: Accepted – Modus Outcomes Interview.
Chronic Lymphocytic Leukemia Patient Volunteers Needed for Paid Research
There is a current opportunity in the United States in urgent need of 10 CLL patients to participate in a research study. The study goal is to better learn about the CLL patient journey, understanding where the unmet needs currently lay. There is a treatment in development that is drafting educational material to help future patients and they would like other CLL patients to review and provide suggestions. Participation would involve a 45-minute web-based interview and participants will compensated $125.
Please help share your voice and speak to help the CLL community. For more information, please call or text Shannon Coates at (760) 529-1247 (PST) or send an email with your phone number and the best time to contact you to email@example.com with the subject line: I’m Interested – CLL Society. If you participate in the study, please let CLL Society know by emailing Support@cllsociety.org with the subject line: Accepted – Patient Connect Interview.