Welcome

Welcome to the club that no one wanted to join. A diagnosis of CLL can be overwhelming. It can be made even more difficult by the need to understand multiple new concepts and to master new medical terminology. Rather than feeling overwhelmed, we recommend that you move slowly and bite off small pieces of the information that you will need to help you. One good thing in CLL is that you will almost always have time to become more expert!

Let’s get you started in the right direction. 

3 Steps to Better Decision Making

Don't panic. Get your bearings.

Develop your secret strength. Build your care team.

  • Take a deeper dive into building your care team! 

Don't go it alone.

Don’t spend another month alone! CLL Society’s approximately 40 support groups nationwide meet virtually once a month. In isolation, we are having conversations with and sharing our CLL worries with only ONE person: ourselves. Experience something better. Outsource your worry and feel the warmth and support of our community. Watch Terry’s video. Don’t let another month go by. Join a CLL-specific support group today.

ADDITIONAL READING

This article will repeat some of the earlier material, but you can still go back and reread them from past CLL Society Tribune editions, Introduction of Immunity Part 1 and Part 2.  Let us put together all the factoids from the first two articles and see if we can
Patient, Know Thyself Mark Hoffman is a long-time CLL patient advocate and facilitator of the CLL Society Patient & Caregiver Support Group in San Diego, CA. In this article from Cancer Health, Mark echoes the importance of the Test Before Treat™ campaign by sharing his story. When Mark was
Anemia is a common problem in CLL and may be an indication to start treatment. However, it is not always well understood or managed. Too many patients self-treat with iron and other supplements that may not only delay proper care but can cause long term problems.

3 Steps to Better Decision Making

Don’t panic. Get your bearings.

Develop your secret strength. Build your care team.

  • Take a deeper dive into building your care team! 

Don’t go it alone.

Don’t spend another month alone! CLL Society’s approximately 40 support groups nationwide meet virtually once a month. In isolation, we are having conversations with and sharing our CLL worries with only ONE person: ourselves. Experience something better. Outsource your worry and feel the warmth and support of our community. Watch Terry’s video. Don’t let another month go by. Join a CLL-specific support group today.

ADDITIONAL READING