October 4, 2023
BREAKING NEWS
The CLL Nurses Note: What to Know About the Newly Approved RSV Vaccines
CLL Society’s COVID-19 Update for the Week of September 18, 2023
ASCO 2023: Dr. Jennifer Woyach on Combination Ibrutinib, Venetoclax, and Obinutuzumab for Previously Untreated CLL
CLL Society Urges the CDC’s Advisory Committee on Immunization Practices to Consider the Needs of the Immunocompromised When Making Their Recommendations for the Updated COVID-19 Booster This Fall

Support Groups  |  Researchers

Smart Patients Get Smart Care™

The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

Newsletter Sign Up
Donate Now

Support Groups  |  Newsletter Sign Up  |  Donate Now

Patient Stories

Be Prepared in Case COVID Hits – Rick’s Story
Soon after my retirement and relocation to Northern California, I had a “new patient” visit to establish medical providers in my new community. The new patient visit led to an obstructive sleep apnea diagnosis which resulted in the recommendation to have my tonsils removed. As part of the pre-operative
Patient, Know Thyself
Patient, Know Thyself Mark Hoffman is a long-time CLL patient advocate and facilitator of the CLL Society Patient & Caregiver Support Group in San Diego, CA. In this article from Cancer Health, Mark echoes the importance of the Test Before Treat™ campaign by sharing his story. When Mark was
David’s Story
(Expert Access & Test Before Treat™) This is just a brief note to tell you about the important impact you had on my treatment for CLL. Last November, through the Expert Access program sponsored by the CLL Society, you were kind enough to review my medical records and chat
Michelle’s Story
When I was first diagnosed in April 2018, my WBC was at 55k, my local Hematologist performed the FISH test and found out I had 11Q with loss of ATM, they told me that only made a difference in the type of treatment I would need and I probably
Heather’s Story
Diagnosed Aug 2018 as a 54-year-old female, with SLL via node biopsy. CT showed extensive lymphadenopathy, very bulky disease, particularly in mesentery. Bloodwork all in normal range. Had BMB in spring 2019 for purposes of FISH. Had been experiencing increasing fatigue and discomfort in gut. Pathologist decided not to
Gary’s Story
I question if my doctor should have genetic tested me before treating me with Bendamustine in December 2013 and if this was the cause of my developing theTP53 mutation after my initial diagnosis of 13q in 2008. After the Bendamustine treatments, I started on Ibrutinib in January 2014. Gary
Bruce’s Story
I was diagnosed accidentally in 2001 during investigation of a single swollen cervical node. My community oncologist at Maine Medical Center recommended chemo immediately. A comprehensive second opinion from Dana Farber led to 15 years of asymptomatic watch and wait. In 2015 a dramatic appearance of symptoms over 3
Tammi’s Story
August 2019 I was diagnosed with CLL in June of 2014. Like most CLL patients, I was originally placed on watch and wait, but my cancer progressed aggressively. After only 17 months, my WBC had exploded higher (it peaked at 350,000 cells per cubic millimeter of blood, up from
Stephen’s Story
At the time of my initial diagnosis — and not because I knew any better, because I knew nothing at all including my not-yet-announced diagnosis – my hematologist ran both a flow cytometry (to diagnose my disease) and a FISH analysis (to explore the genetics of my CLL). Though
CLL Society Fast Find

CLL SOCIETY FAST FIND

One click to our most popular content.

CLL Society - NEWLY-DIAGNOSED
CLL Society-TREATMENT-AND-RESEARCH
CLL Society - Normal Lab Values & Tracker
CLL Society - Testing and Imaging
CLL Society - COVID-19 Updates
CLL Society - Ask the Experts
CLL Society - Free CLL Expert Opinion
CLL Society - Medicine Cabinet
CLL Society - NEWLY-DIAGNOSED
CLL Society-TREATMENT-AND-RESEARCH
CLL Society - Normal Lab Values & Tracker
CLL Society - CLL Testing and Imaging
CLL Society - Ask the Experts
CLL Society - COVID-19 Updates
CLL Society - Medicine Cabinet
CLL Society - Free CLL Expert Opinion
quicklinks

UPCOMING
EVENTS

CLL SOCIETY
SUPPORT GROUPS

LIST OF
CLL HEALTHCARE PROVIDERS

OFFICIAL STATEMENTS AND GUIDELINES

CLL GLOSSARY

CLL SOCIETY
IN THE NEWS

ADVOCACY

QUICK LINKS

UPCOMING
EVENTS

CLL SOCIETY
SUPPORT GROUPS

LIST OF
CLL HEALTHCARE PROVIDERS

OFFICIAL STATEMENTS AND GUIDELINES

CLL GLOSSARY

CLL SOCIETY
IN THE NEWS

ADVOCACY