Quarter 1 2016: Volume 2 Issue 1

Welcome to the First 2016 Issue of The CLL Tribune

It’s our BIRTHDAY! One year ago today, the CLL Society website was launched and what a year it has been. Our small cadre of dedicated volunteers, and all of you readers and supporters, have brought us here in our first year:

  • 170,000 plus page views on website
  • 120 plus new articles written/posted
  • 8 leukemia and lymphoma conferences covered and explained in patient-friendly language
  • 5 alliances formed with other leukemia and lymphoma non-profits
  • 4 live CLL patient education meetings hosted
  • 8 CLL-specific support and education groups being launched or supported across the country

We are so appreciative of the support and feedback that we have received over the past year. We’re excited to be able to continue our efforts to address the unmet needs of CLL patients in 2016 and we hope you will continue to share your thoughts with us. What are we doing well? What could we do better? Let us know at contact@cllsociety.org.

In the Reader Poll for this issue of The CLL Tribune, we would like to understand, from your perspective, what criteria are most important when making decisions about treatment, regardless of whether you have been treated or not. Please take a few minutes to complete the survey. We hope to present the findings at a symposium at the European Hematology Association (EHA) 2016 Congress this June.

If you know of someone who could benefit from learning more about CLL, please invite them to visit cllsociety.org and sign up to receive the newsletter and email alerts. Feedback and suggestions for future newsletter topics are always welcome and can be emailed to contact@cllsociety.org .

The pace of change in CLL is not slowing. 2016 promises more important research, and we look forward to sharing and explaining all the latest news with the CLL community.

We hope you enjoy the current issue. Be on the lookout for our next issue in June!

Living Well With CLL

Clinical Trials: A Two Person Perspective

By Paul Zamecnik and Teresa Altemeyer – Patients

In mid-year 2014, Teresa Altemeyer and Paul Zamecnik didn’t know each other…Read more

The Value of Support Groups – A Personal Perspective

By Teresa Altemeyer – Patient

As you might have read on the CLL Society website recently, they are working diligently….Read more

What Can a Primary Care Physician Assistant Do for You

By Kent Stout, PA-C

Physician Assistants, PAS, are mid – level practitioners. We study in a special post-graduate program…Read more

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Did You Know?

CLL Facts

By Brian Koffman, MD

CLL is always a cancer of the B-lymphocytes. There used to be a possible diagnosis of T-cell CLL….Read more

The Basics

What is the Spleen?

By Brian Koffman, MD

Normally safely protected up under the left rib cage, the normal spleen weighs between 5 to 7 ounces…Read more

Beyond The Basics

Hope For Patients Who Discontinue Ibrutinib or Idelalisib

By Anthony R Mato, MD

There is little question that the approval of kinase inhibitor therapies such as ibrutinib have revolutionized the care of patients with CLL…Read more

Ask & Tell

View Reader Poll Results & Submit Questions

View the results of the reader poll from our last issue, submit a question you’d like addressed in future newsletters and participate in another brief reader poll… Read more

Ask The Doctor

Questions submitted by readers and answered by the CLL Society Medical Advisory Board

By Richard Furman, MD

I have not received chemotherapy for my stage 3 CLL and do not intend to do so. I am prescribed Ibrutinib at great cost to me…Read more

Conference Coverage

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.