Quarter 1 2017: Volume 3 Issue 1

Welcome to the First 2017 Issue of The CLL Tribune

This issue of The CLL Tribune is our 7th quarterly newsletter and I am proud to say it marks two years since the CLL Society has had a web presence. We have only grown because of your support. Thank you.

This issue includes our Basic section where I do the math on how much CLL we have in our blood. In Beyond the Basics, Dr. Pagel discusses the rapidly changing role of transplant in CLL. From ASH 2016, in Conference Coverage, Dr. Seymour discusses promising new BTK inhibitors. I hope you enjoy my Did You Know fun CLL facts and please don’t skip our Ask & Tell section where you can read the results of last issue’s Reader Poll or Ask the Doctor section featuring Dr. Furman

The Living Well with CLL section has five amazing and inspiring articles all written by patients: CLL Life Lessons by Jennifer Woolf; A Sentence of Life! By Derek Caine; Me and my Leukemia, BFFs Forever by Nancy O’Brien Simpson; n of 1 Chapter 28 by Glenn Sabin with my brief intro; and a book review of n of 1 Book by Rick Conner.

We can learn so much from each other. We are so grateful to all our contributors and for your readership and support that in two short years has made us the go-to site for patient-friendly education, support and research. And please, if you have a story to tell or a lesson to share, we need you to write for us.  Reach out to us at support@CLLSociety.org.

Stay strong. Stay in touch. We are all in this together.

Brian Koffman, MD
Medical Director, CLL Society

Living Well With CLL

n of 1 Chapter 28

Introduction by Brian Koffman, MD

Glenn Sabin has well-documented CLL that required treatment, has refused chemo-immunotherapy and has knocked back his disease not once, but twice with an aggressive multi-part response to his cancer with a deeply healthy life style…Read more

n of 1 Book Review

 By Rick Conner – Patient

When my regular cholesterol blood tests came back in November 2015 with a slightly elevated Absolute Lymph Count (ALC) of 6.53 (vs range of 2.3-3.6…Read more

Me and my Leukemia, BFFs Forever

By Nancy O’Brien Simpson – Patient

The year was 2005, and I was a psychotherapist who had the world by the tail. A gorgeous family, an amazing home, a stellar career, fun friends. And, I also had a lump…Read more

CLL Life Lessons

By Jennifer Woolf – Patient

My local oncologist was both urgent and firm in telling me that I needed to begin treatment for CLL immediately. I hesitated. “You owe it to your family,” he said…Read more

A Sentence of Life!

By Derek Caine – Patient

In the autumn of 2003, I saw a picture of myself at a party and noticed a swelling on my neck. I saw my GP and he thought it might have something to do with…Read more

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Did You Know?

CLL Facts

By Brian Koffman, MD

MBL or monoclonal B cell lymphocytosis is a condition where B-cells identical to those in CLL are found in low numbers in the blood stream. Although a small percentage of those…Read more

The Basics

What Can I Tell From a Simple Blood Count About the Amount of CLL in my Blood?

By Brian Koffman, MD

I was asked what seems as if it should be a simple question: What can one tell about our cancer load in CLL (chronic lymphocytic leukemia) from the common and dirt-cheap…Read more

Beyond The Basics

Stem Cell Transplantation in Chronic Lymphocytic Leukemia: Who, What, When and Why Aren’t More Patients Transplanted?

By John Pagel, MD PhD

Those who treat chronic lymphocytic leukemia (CLL) are commonly asked if we can cure the disease. It is what every patient wants to know. The majority of patients are told…Read more

Ask & Tell

View Reader Poll Results & Submit Questions

View the results of the Q4 2016 Reader Poll, submit a question you’d like addressed in future newsletters and participate in another brief reader poll… Read more

Ask The Doctor

Questions submitted by readers and answered by the CLL Society Medical Advisory Board

By Richard Furman, MD

As a CLL/SLL patient, what other illnesses am I more inclined to have based on my compromised immune of the system? There are several diseases CLL patients are more…Read more

Conference Coverage

ASH 2016: An Interview with Dr. John Seymour on New BTK Inhibitors in CLL

By Brian Koffman, MD and John Seymour, MD

Professor John Seymour of Peter MacCallum Cancer Centre in Melbourne, Australia describes two new BTK inhibitors beyond ibrutinib in our short interview at the 2016…Read The Interview

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The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.