Quarter 1 2019: Volume 5 Issue 1

Welcome to the First 2019 Issue of The CLL Society Tribune

Welcome to the CLL Society Tribune!

Spring Has Sprung

Welcome to spring. It’s a season full of hope and renewal and a reminder to all blood cancer patients and caregivers to nourish themselves in the warmth and gentle breezes of this wonderful time of year. As the sun shines and the bees buzz, it’s a reminder to get outside and be active. It’s good for our health. The spring fruits and vegetables lure us to a healthy diet, and the bright flowers that bloom let us know that we can flourish too—all in our own unique ways. Take the time to take care of yourself. You’ll feel better, you’ll look better, and you’ll do better too.

If you or a loved one has been helped by the CLL Society, please consider making a donation.

Janet Morrison

Living Well With CLL

Why I Participate in a Clinical Trial

By Julia Walsh – Patient

When I was diagnosed in 2013, my treatment options were limited. I saw a community hematology-oncology doctor who told me that I would likely receive FCR, or chemotherapy, as my first line of treatment … Read more

Knowing What You Don’t Know

By Janet Morrison – Patient

”The wise man is one who knows what he does not know.” So says Lao-Tze, an ancient Chinese philosopher. I’ve learned that lesson the hard way during my CLL journey. Here’s a prime example: … Read more

My Privilege

By Susan Chappell – Caregiver

When my loved one heard “you have cancer”, especially since there were no evident symptoms, I thought there must be a mistake. I wanted a do-over. Surely, they were wrongRead more

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Did You Know?

CLL Facts

By Brian Koffman, MD

This quarter’s Tribune will review the immune system, and retesting your FISH … Read more

The Basics

CLL and Caretaking

By Claudia Filippino – patient

This article will offer some insights into the specifics of anxiety and fatigue for an individual with CLL. … Read more

Beyond The Basics

White Blood Cells

By Susan Leclair, PhD, CLS (NCA)

White blood cells are so called because when you separate cells by centrifugation, they appear to be a small fluffy white cloud resting on top of the red cells … Read more

Conference Coverage

ASH 2018: Dr. Woyach on ibrutinib with or without rituximab versus bendamustine plus rituximab

By Brian Koffman, MD

Practice changing news! Please enjoy this important interview with Dr. Jennifer Woyach from ASH 2018: … Watch The Interview

Ask & Tell

Results of Caregiver Survey

During December 2018 through March 2019, the CLL Society conducted a Caregiver poll among readers of The CLL Society Tribune. … See the results!

Our Next Survey: Shared Decision Making

The topic for our Q2 CLL Society Tribune Ask & Tell Survey will focus on the importance of Shared Decision Making (SDM) … Read more!

Ask The Doctor

Questions submitted by readers and answered by our CLL Society experts

By Richard Furman, MD

Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the CLL Society…Read more

Ask The Pharmacist

Questions submitted by readers and answered by our CLL Society experts

By Thomas E Henry III, MBA, RPh, CPh

Thomas E Henry III, MBA, RPh, CPh from Burlington Consulting Associates answers readers’ pharmacy questions submitted to the CLL Society…Read more

Ask The Lab Scientist

Questions submitted by readers and answered by our CLL Society experts

By Susan J. Leclair, PhD, CLS (NCA)

Susan J. Leclair from University of Massachusetts Dartmouth answers readers’ lab scientist questions submitted to the CLL Society…Read more

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.