Welcome to the Second 2017 Issue of The CLL Tribune
We’re all in this together—patients, caregivers, family and friends, as well as doctors, nurses, and scientists. We learn from each other—be it the telling of one patient’s own unique CLL journey, or reading and analyzing the data from a clinical trial. It’s all important information. It helps us live a better today and gives us hope for tomorrow. Hope for better treatments. Hope for a cure.
As important as all this information is, each story, video, and article had to start with a question. How will I respond to this treatment? What does this lab report mean? How long will this new drug work on the majority of CLL patients?
That’s why we at the CLL Society ask questions. How can we serve you better? What do you need to know from a CLL specialist? What new promising treatments are on the horizon? We ask the questions so we can serve you better.
In that light, if you are a caregiver, please take a few minutes to participate in our Ask & Tell Reader Poll that focuses on the role of the caregiver, their support system, and how the CLL Society can further assist them.
Be sure to check out The Basics section that discusses immunizations and health screening recommended for CLL patients. In Beyond the Basics, learn how to understand and gain the most benefit from ClinicalTrials.gov. In Conference Coverage, read Dr. Brian Koffman’s interview with Dr. George Follows on Late Resistance to Ibrutinib in CLL. And, don’t forget to read stories from CLL patients in Living Well with CLL.
And, finally, read answers to questions submitted by Readers in Ask The Doctor. It can help you. It can help others too. Because we’re all in this together.
Finding the Right Treatment for CLL Takes a Lot of Study, Timing and Some Luck!! (A cautionary account of a tricky year…)
By Mark Hoffman – Patient
This is the story of how I got to the treatment that was most likely by far the best for my genetics…Read more
By Patti Jones – Patient
Throughout my life I have always been a very healthy woman, very seldom going to a doctor for even a routine checkup. My mom, dad and grandparents all lived into their eighties…Read more
Clinicaltrials.gov is a US-based website that requires companies and investigators to post information about clinical trials in a public forum…Read more
By Richard Furman, MD
Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the Q1 2017 issue of The CLL Tribune…Read more
By Brian Koffman, MD and George Follows, PhD, FRCP, FRCPath
At ASH 2016 Dr. George Follows of Cambridge, England discusses our evolving understanding of life after ibrutinib for those of us with CLL…Read The Interview
We’d like to thank the supporters of The CLL Tribune:
- Genentech/Biogen Idec
- Sunesis Pharmaceuticals
- TEVA Pharmaceuticals
- TG Therapeutics
The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.