Quarter 2 2021: Volume 7 Issue 2

Welcome to the Second 2021 Issue of The CLL Society Tribune

Last summer, our daughter-in-law received the remnants of a half-used package of unidentified seeds from her father, which she threw into a barren garden box on the back alley behind their house. Seven-foot-high yellow sunflowers and scarlet-pink hollyhocks quickly shot up towards the sky. Swarms of whimsical wildflowers have partied non-stop at their lower stems for over a year now. Neighbors drive by slowly and say, “Wow!” While reading our patient stories here, I say, “Wow!” From color, such comfort! From hardship, such healing! From poor care, such expert care! We are grateful to our patient/ writers for letting us into their worlds. We are grateful for our science writers, even when they talk over our heads. And we are thankful that summer is here. Be strong and stay safe. We are all in this together. Happy summer!

Patty Koffman
Co-Founder & Communications Director
CLL Society

Living Well With CLL

How I See It

By True Ryndes, ANP ret., MPH – Patient

Enjoy True Ryndes’ creative compositions of squares, classic symbols of stability, for balance and meditative calm. Read more

My Struggle with Leukemia

By Jerry Croft, EdD – Patient

Read about Jerry’s CLL journey over the decades. Although there have been setbacks along the way, he happily reports that he continues to enjoy a rich and rewarding life. Read more

How I Proved to Be My Own Best Advocate

By Ramie Case – Patient

Ramie share’s how important it was for her to learn as much as possible in order to become empowered to be an active participant in her care.  Read more

Ask & Tell

Reader Poll Results: Treatment Decisions

During the first quarter of 2021, CLL Society conducted a poll among readers of The CLL Society Tribune about their treatment decisions. There were 188 respondents. See the results!

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Did You Know?

CLL Facts:
Immunity Part 1

By Brian Koffman, MDCM (retired), MSEd

Dr. Koffman provides an outline on immunity and CLL.  Read more

The Basics

Introduction to Immunity

By Susan J. Leclair, PhD, CLS (NCA)

This is a general introduction to one of the ways that your immune system tries to protect you. Dr. Leclair has combined and simplified a fair number of steps in order to give the reader a general sense of the function.  Read more

Beyond The Basics

Lies, More Lies, and Statistics

By Susan J. Leclair, PhD, CLS (NCA)

Dr. Leclair breaks down the fundamentals of statistics, the study of populations and their role in clinical trials. Read more

Ask The Experts

Questions submitted by readers and answered by our CLL Society experts. Read more

Conference Coverage

ASH 2020: Dr. John Allan on Bispecific Antibodies for Chronic Lymphocytic Leukemia (CLL)

By Ann Liu, PhD

At the annual meeting of the American Society of Hematology (ASH) 2020, our own Dr. Brian Koffman interviewed Dr. John Allan, a CLL specialist at Weill Cornell in New York City. They discussed bispecific antibodies, which are a new class of immunotherapy drugs.  Watch The Interview

The CLL Society Tribune is looking for your contribution including articles, storytelling, poems, drawings, or other creative mediums. Please share!

Email support@cllsociety.org with your interest!

The CLL Society Tribune is made possible in part by grant support from AbbVie and Adaptive Biotechnologies.

 

DISCLAIMER
The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.