Quarter 3 2015: Volume 1 Issue 1

Welcome to the Inaugural Issue of The CLL Tribune!

The CLL Society is proud to introduce the first edition of our quarterly newsletter dedicated to providing up-to-date information, articles of interest, and advice for caregivers and patients with CLL and related blood cancers.

In addition to the CLL Society website and our pages on Facebook and Twitter, these newsletters will be yet another way for us to keep you informed and connected to the CLL community—assisting you in becoming an empowered patient equipped with the information and tools you need to navigate your unique cancer journey.

In each issue you will find articles explaining some of the CLL basics; more in-depth reviews and analysis of specific aspects of the disease, new treatments and current research findings; coverage of recent medical conferences; and articles written by patients on various topics related to living well with cancer.

In addition, readers will be invited to participate in brief reader polls and to submit questions to the members of the CLL Society Medical & Scientific Advisory Board, which will be considered for response and inclusion in future issues of The CLL Tribune. (Only one or two questions per newsletter will be selected to be answered.)

In this our first issue, we are particularly proud of the strong and broad contributions made by many fellow patients and caregivers with CLL.

If you know of someone who could benefit from learning more about CLL, please invite them to visit cllsociety.org and sign up to receive the newsletter and email alerts. Feedback and suggestions for future newsletter topics are always welcome and can be emailed to contact@cllsociety.org. We hope you enjoy our inaugural issue. Keep on the lookout for our next issue in December!

Living Well With CLL

365 Days of CLL: From Scientist to Caregiver

kateBy Kate Woronowicz – Caregiver

I remember the day my dad told me about his health. It was in September. I called to video chat with the family because it was his birthday. The family gathered around my brother’s laptop at the kitchen table…Read more

The Importance of Meaning

markBy Mark Silverstein – Patient

Along with food, water and shelter, connecting to what gives us a sense of meaning in our lives…Read more

Reluctantly Studying CLL Since 2012

lindaBy Linda Lannom – Caregiver

I was trained in survey methods, statistics, and medical sociology.  I’ve been a member of…Read more

My Big Fat (Life-Saving) BMT

erinBy Erin Michaela Sweeney – Patient

On February 10, 2011, with one phone call I became a thirty-nine-year-old terminal cancer patient…Read more

Exercise and Cancer Survivorship

kenBy Ken Martin – Patient

A cancer diagnosis often starts with symptoms of fatigue, and cancer treatments can make those symptoms worse…Read more

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Did You Know?

CLL Facts

By Brian Koffman, MD

CLL is classified as both a type of leukemia (cancer of the blood) and lymphoma (cancer of the lymphatic system)…Read more

The Basics

What is CLL (chronic lymphocytic leukemia) and what is SLL (small lymphocytic lymphoma)?

By Brian Koffman, MD

Our medical director answers the most basis questions about CLL sitting in front of a lithograph by Ferdinand Leger found under car parts in a friend’s garage…Read more

Beyond The Basics

A Look in the Treatment Toolkit – Bcl-2 Antagonists

Picture1By Wayne Wells – Patient

This article may be tough going for those without a deeper interest and knowledge about CLL cellular biology…Read more

Ask & Tell

With our goal to address the unmet needs of the CLL community, we, at the CLL Society will periodically reach out to our readers to gather some information and ask for your feedback.

Ask The Doctor

Top 15 Questions About Ibrutinib

Picture1By John Byrd, MD

Can I take this at any time of the day? Studies with ibrutinib have been done giving it together with food and on an empty stomach…Read more

Conference Coverage

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.