Quarter 3 2016: Volume 2 Issue 3

Welcome to the Third 2016 Issue of The CLL Tribune

Here in the U.S., the autumn leaves are coming—full of crimson, browns, and gold. We’re leaving the warm, sunny days of summer behind. It’s time to get comfy in our warm sweaters and sit by the fire to await the busy holiday seasons of winter.

Well, that’s how most of us might think of the fall season personally, but at the CLL Society fall is going to be a busy time. CLL never sleeps. The research and advances in treatment options keep coming—thankfully for us. We will be writing articles on new CLL therapies and cutting-edge research. We’ll put up CLLsociety.org video interviews with CLL experts from around the globe.

And our Dr. Brian Koffman will be participating in the CLL Horizons 2016 meeting in Belgrade, Serbia in November and attending the American Society of Hematology meeting in December. The CLL Society patient advocates are busy too, speaking to CLL patients and caregivers across the United States, and our CLL Society Support Network group is busy helping support groups get started throughout the country.

So, as you sip your hot tea, on these colder fall days, keep reading, listening, and learning about CLL—because we believe Smart Patients Get Smart Care™. Here’s the CLL Society fall newsletter to get you started.

Living Well With CLL

Reflections on Risking a Safari in Kenya and Tips for Safe Travel to Exotic Places when Fighting CLL

By Brian Koffman, MD and CLL Patient

Was it a good idea to go on a photo safari all over Kenya? The safest, and maybe the smartest course is to stay put…Read more

Standing Up For Your Health

By John Huber, MS – CLL Society Board Member

Several years ago when I was working with people with rare bone marrow failure diseases (aplastic anemia and MDS)…Read more

My Treatment-Naïve Ibrutinib Journey – The First 30 days

By Bob Barton – Patient

As a treatment-naïve CLL patient, I had to make a decision on my imminent treatment…Read more

Could a CLL Clinical Trial Save My Life? What Were the Risks?

By Linda Brandt Myers – Patient

In May 1994, on the eve of my marriage to my husband, Sandy, I was diagnosed with chronic lymphocytic leukemia (CLL)…Read more

Connect in Person: Join A Local CLL Support Group!

By Barbara Massey – Patient

In March of 2006 my life was good. It seemed like all my ducks were in a nice little row. Then one day…Read more

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Did You Know?

CLL Facts

By Brian Koffman, MD

Blood cancers, such as CLL, are often where the first breakthroughs come in oncology perhaps because it is so easy to get a tissue sample to test…Read more

The Basics

Basic Guide to the Bone Marrow Report of a Patient with CLL and SLL

By William G. Wierda, MD, PhD

Reviewing and understanding your bone marrow report can be confusing and difficult. This is because there is variability in the testing done for the evaluation…Read more

Beyond The Basics

Why your doctor is always going FISH-ing: The importance of Del 17p and other chromosomal changes

By Michael Choi, MD

It is a tremendous understatement to say that one should not take a “one-size fits all” approach …Read more

Ask & Tell

View Reader Poll Results & Submit Questions

View the results of the reader poll from our last issue, submit a question you’d like addressed in future newsletters and participate in another brief reader poll… Read more

Ask The Doctor

Questions submitted by readers and answered by the CLL Society Medical Advisory Board

By Richard Furman, MD

Does ibrutinib need to be stopped if a rash develops?…Read more

Conference Coverage

An Interview from ASCO 2016 with Dr. John Pagel on the Education Session on CLL

By Brian Koffman, MD and John Pagel, MD, PhD

Dr. John Pagel was one of the presenters in an all-star panel on CLL management and controversy at ASCO 2016…Read The Interview

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.