Quarter 3 2018: Volume 4 Issue 3

Welcome to the Third 2018 Issue of The CLL Tribune

It's a Maze Out There!

From tried-and-true treatments, to novel therapeutics and diagnostics, it’s a winding and often-changing road to travel if you or a loved one has been diagnosed with CLL. Navigating the unique path that is best for you is a balancing act that requires finesse and persistence. That’s why the CLL Society is here – to provide you with information and resources that will help you in your journey. In this issue of the CLL Tribune, you can learn from patients about developing healthy eating habits and tackling advanced care planning. You can also gain insight into managing the cost of CLL care and learn more about the fatigue that is all too common for CLL patients. You can even submit a question that could be answered by a CLL expert in a future issue of the CLL Tribune. And, remember to let your voice be heard by taking our patient/caregiver survey on Thinking About CLL.

Because we’re all in this together.

Janet Morrison

Living Well With CLL

The Impact of Diet
on CLL

By Glenn Sabin – Patient

From a lifestyle standpoint, nutrition, physical activity, and stress reduction float to the top of core health determinants correlating to the prevention of malignant disease….Read more

Ryan Chappell’s Story: August 2018

By Ryan Chappell – Patient

In October 2006, I asked my neighbor, a general practitioner, if he could check my cholesterol. It had been a year or two since the last test. He said “Sure, come on by the office”…Read more

Advance Care Planning for Those with CLL/SLL

By Edward Ratner, MD and Amber Koehler, PA-C

Over the past 20 years, great advances have been made in the management of chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL)…Read more

Are You A Long-Distance Caregiver? Get to Know Your Loved One’s Neighbors

By Claire Wentz

Long-distance caregiving is not easy. When you are a caregiver for a loved one with chronic lymphocytic leukemia, there can be additional challenges. …Read more

Food for thought and for health… Jay’s awesome Macrobiotic CLL adventure!

By Jay M. Blatt – Patient

What does Macrobiotics mean to me as a CLL patient?  Macrobiotics literally means “big life, as in taking whatever steps are necessary to maximize health!”  You’ll find as many definitions of Macrobiotics as there are macrobiotic healers. In my case the phrases “You are what you eat” and “let food be thy medicine and medicine be thy food” best describe Macrobiotics…Read more

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Did You Know?

CLL Facts

By Brian Koffman, MD

This quarter’s Tribune will review some simple facts related to the most dreaded predictive factors, namely 17p deletion and p53…Read more

The Basics

CLL Related Fatigue

By Brian Koffman, MD

Fatigue is one of the most common chronic lymphocytic leukemia symptoms and at the same time one of the most commonly overlooked and undertreated symptoms… Read more

Beyond The Basics

What is IgVH and why is it important?

By Susan Leclair

DNA within a cell is made up of a ladder of two long strings of many deoxyribose molecules which can look like the two long poles of a ladder…Read more

Conference Coverage

ASH 2017: Atlanta Professor Michael Hallek on MRD Negativity in CLL

By Brian Koffman, MD

In my interview from the American Society of Hematology Annual Meeting in 2017 (ASH 2017), Professor Doctor Hallek shares his enthusiasm about the expanding role of minimal residual disease negativity (MRD-) in managing chronic lymphocytic leukemia….Watch The Interview


Get Ready for Flu Season

By Janet Morrision

When it comes to contagious diseases like the flu, CLL patients are among the most vulnerable to infection and serious complications… Read more

Ask & Tell


This month the CLL Society has a single question survey ( plus demographics) about just how much time we spend thinking about our CLL…. Read more

Ask The Doctor

Questions submitted by readers and answered by our CLL Society experts

By Richard Furman, MD

Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the CLL Society…Read more

Ask The Pharmacist

Questions submitted by readers and answered by our CLL Society experts

By Thomas E Henry III, MBA, RPh, CPh

Thomas E Henry III, MBA, RPh, CPh from Burlington Consulting Associates answers readers’ pharmacy questions submitted to the CLL Society…Read more

Ask The Lab Scientist

Questions submitted by readers and answered by our CLL Society experts

By Susan J. Leclair

Susan J. Leclair from University of Massachusetts Dartmouth answers readers’ lab scientist questions submitted to the CLL Society…Read more

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.