Quarter 3 2019: Volume 5 Issue 3

Welcome to the Third 2019 Issue of The CLL Society Tribune

Welcome to the CLL Society Tribune!

As you explore this Q3 2019 Issue of the CLL Society Tribune, you will fall into step with other CLL patients who are walking in your shoes as they write about their large and small worries, offer poetry, ask questions, and receive answers from our CLL doctors, laboratory scientist, pharmacist, and end of life doctor who mobilize their considerable depth of knowledge and experience to answer our community’s questions.

Keep in touch. Stay strong. We are all in this together.

If you or a loved one has been helped by the CLL Society, please consider making a donation.

Best of health!
Patty Koffman

Patricia Koffman, Executive Director
CLL Society
P.O. Box 1390
Claremont, CA 91711

Living Well With CLL

Does it equal out?

By Ryan Chappell – Patient

Life is a constant series of changes and choices. Some we get to make, and others are given to us without regard to our personal feelings. … Read more

Operating Nurse and CLL

By Pamela Zeiler – Patient

My profession as an operating room nurse (38+ years) certainly did not help my thoughts as to how and why I developed CLL. I wanted to know WHY and HOW I got this! … Read more

Stopping lbrutinib after 2-1/4 Years: Going back to Watch and Wait

By Bob Barton – Patient

This is a continuation of my previous two articles that are chronicles of my fight with CLL. In continuing the series, I hope to shed light on using ibrutinib to manage CLL for those patients who are nearing the end of their “watch and wait” status and need to decide on a therapy. … Read more

Waterfalls of Grace

A poem by Mary B. McAllister – Patient

My glass has always been half-full—
A clear and inborn vision.
It isn’t something I have earned,
But a blessing I’ve been given.Read more

Ask & Tell

Results of Before End of Life and Palliative Care Survey

During July through September 2019, the CLL Society conducted a poll among readers of The CLL Society Tribune. … See the results!

Our Next Survey: CLL Society 2019 Website Survey

The topic for our Q4 CLL Society Tribune Ask & Tell Survey will focus on what you like and how we can improve the CLL Society’s website and services … Read more!

Subscribe to The CLL Tribune

CLL Tribune is accepting all forms of storytelling, including articles, poems, drawings, or other creative mediums. Contribute today! Email support@cllsociety.org with your interest!

Did You Know?

CLL Facts

By Brian Koffman, MD

This quarter’s Tribune will review the incidence and prevalence of CLL. … Read more

The Basics

More Details on Prognostic and Predictive Tests and When Should I do them for my CLL?

By Brian Koffman, MD

There are many prognostic and predictive tests that can be ordered at different times on our CLL journey. Here are my own thoughts on this frequently asked question. … Read more

Beyond The Basics

CD-20 targeting or not? Combining rituximab to venetoclax in relapsed chronic lymphocytic leukemia

By Alan Skarbnik, MD

The landscape of CLL is changing fast. Novel therapies and combinations are being studied and approved at a significant pace. Venetoclax is a very potent anti-CLL agent that’s approved in the relapsed setting both as a single-agent and in combination with rituximab … Read more

Conference Coverage

ASH 2018: Dr. Nitin Jain on combining Ibrutinib with Fludarabine, Cyclophosphamide and Obinutuzumab for IGVH mutated CLL patients.

By Brian Koffman, MD

Could we have the best of both worlds- the fast kill and fixed dose of chemo and the power of a targeted agent? I had the opportunity to interview Dr. Jain at the annual meeting of the American Society of Hematology in San Diego in Dec. 2018, where he describes his early research results with just such a cocktail. … Watch The Interview

Ask The Doctor

Questions submitted by readers and answered by our CLL Society experts

By Richard Furman, MD

Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the CLL Society…Read more

Ask The Pharmacist

Questions submitted by readers and answered by our CLL Society experts

By Thomas E Henry III, MBA, RPh, CPh

Thomas E Henry III, MBA, RPh, CPh from Burlington Consulting Associates answers readers’ pharmacy questions submitted to the CLL Society…Read more

Ask The Lab Scientist

Questions submitted by readers and answered by experts in the field

By Susan J. Leclair, PhD, CLS (NCA)

Susan J. Leclair from University of Massachusetts Dartmouth answers readers’ lab scientist questions submitted to the CLL Society…Read more

Ask the Hospice/Palliative Care Doctor

Questions submitted by readers and answered by experts in the field

By Ed Ratner, MD

Dr. Ratner at the Minneapolis VA Medical Center answers readers’ hospice/palliative care questions submitted to the CLL Society… Read more

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.