Welcome to the Fourth 2019 Issue of The CLL Society Tribune
This Year
Sincere thanks to all who have given so generously to the CLL Society this year!
For those considering making a contribution, or donating again, please give generously.
Reasons below.
Many people you know, and many you do not know, will benefit from your kindness.
We know that…
This year, someone will be startled by a diagnosis.
This year, someone will learn from www.cllsociety.org
what CLL is all about.
This year, someone will feel alone.
This year, someone will be comforted in a
CLL Society Support Group.
This year, someone will try to develop a balanced view of Watch and Wait.
This year, someone will read everything in
Living Well with CLL.
This year, someone will desperately need an expert opinion.
This year, someone will receive a free 2nd Opinion
from a CLL expert in Expert Access.
This year, someone will be taking a medication that we know will not work.
This year, someone will be given a Test Before Treat™ bracelet, read the inside, and change their course of treatment.
This year, someone will need to make a critical treatment decision.
This year, someone will enter a clinical trial that they learned about through the CLL Society.
This year, someone will learn a lot from Patient Educational Forums and CLL Society Webinars.
Take care of someone.
Donateto the CLL Society, where Smart Patients Get Smart Care™.
Thank you!
Patricia Koffman, Executive Director
CLL Society Inc.
Living Well With CLL
Life is Good!
By Cathy Jensen
Cathy writes about her lifelong friend Mitzi and how life should be celebrated! … Read more
4 Tips for Managing the Psychological Impact of CLL
By Brian Koffman – Patient
Dr. Koffman offers his best tips for managing the psychological impact of CLL. … Read more
Bulldozing a New Trail through the CLL Landscape
By Brian Maxson – Patient
I’m Brian Maxson, and this is my CLL journey, what’s happened so far and what I’m doing with it. … Read more
Cajun Gingerbread
A recipe by Patricia Koffman
The Cajun Gingerbread recipe first came into our lives when we sent our sixth and fourth grade daughters to a summer cooking class … Read more
Ask & Tell
Results of the CLL Society 2019 Website Survey
During June through November 2019, the CLL Society conducted a poll among readers of The CLL Society Tribune. … See the results!
Our Next Survey: Your Biggest Wish!
In this Season of Miracles, please share your BIGGEST WISH for what the CLL Society should be doing or working towards in 2020. … Read more!
Subscribe to The CLL Tribune
CLL Tribune is accepting all forms of storytelling, including articles, poems, drawings, or other creative mediums. Contribute today!
Email support@cllsociety.org with your interest!
Did You Know?
The Basics
Vaccinations in CLL
By Chris Pleyer, MD
Patients with chronic lymphocytic leukemia (CLL) have an increased risk of infection due to a weakened immune system. At least one third of CLL patients are expected to have one or more major infections during the course of their disease. … Read more
Beyond The Basics
Normal Lab Values
By Susan Leclair, PhD, CLS (NCA)
Getting a laboratory test result really has no meaning without having something with which to compare it. Its meaning comes from comparing it to reference values, which are the values expected for a group of otherwise healthy persons. … Read more
Conference Coverage
iwCLL 2019: Neil Kay MD on Complex Karyotype in CLL
By Brian Koffman, MD
At the iwCLL (International Workshop on CLL) held this past October in Edinburgh, Scotland, I caught up with Dr. Neil Kay to discuss some of the recent research on predictive and prognostic markers in chronic lymphocytic leukemia presented at the biennial conference. … Watch The Interview
Ask The Doctor
Questions submitted by readers and answered by our CLL Society experts
By Richard Furman, MD
Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the CLL Society…Read more
Ask The Pharmacist
Questions submitted by readers and answered by our CLL Society experts
By Thomas E Henry III, MBA, RPh, CPh
Thomas E Henry III, MBA, RPh, CPh from Roswell Park Comprehensive Cancer Center answers readers’ pharmacy questions submitted to the CLL Society…Read more
Ask The Lab Scientist
Questions submitted by readers and answered by experts in the field
By Susan J. Leclair, PhD, CLS (NCA)
Susan J. Leclair from University of Massachusetts Dartmouth answers readers’ lab scientist questions submitted to the CLL Society…Read more
We’d like to thank the supporters of The CLL Tribune:
- AbbVie
- Beigene
- Genentech/Biogen Idec
- Gilead
- Pharmacyclics/Janssen
- Sunesis Pharmaceuticals
- TG Therapeutics
- Verastem
DISCLAIMER
The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.