Quarter 4 2019: Volume 5 Issue 4

Welcome to the Fourth 2019 Issue of The CLL Society Tribune

This Year

Sincere thanks to all who have given so generously to the CLL Society this year!
For those considering making a contribution, or donating again, please give generously.
Reasons below.

Many people you know, and many you do not know, will benefit from your kindness.

We know that…

This year, someone will be startled by a diagnosis.
This year, someone will learn from www.cllsociety.org
what CLL is all about.

This year, someone will feel alone.
This year, someone will be comforted in a
CLL Society Support Group.

This year, someone will try to develop a balanced view of Watch and Wait.
This year, someone will read everything in
Living Well with CLL.

This year, someone will desperately need an expert opinion.
This year, someone will receive a free 2nd Opinion
from a CLL expert in Expert Access.

This year, someone will be taking a medication that we know will not work.
This year, someone will be given a Test Before Treat™ bracelet, read the inside, and change their course of treatment.

This year, someone will need to make a critical treatment decision.
This year, someone will enter a clinical trial that they learned about through the CLL Society.

This year, someone will learn a lot from Patient Educational Forums and CLL Society Webinars.

Take care of someone.

Donateto the CLL Society, where Smart Patients Get Smart Care™.

Thank you!
Patricia Koffman, Executive Director
CLL Society Inc.

Living Well With CLL

Life is Good!

By Cathy Jensen

Cathy writes about her lifelong friend Mitzi and how life should be celebrated! … Read more

4 Tips for Managing the Psychological Impact of CLL

By Brian Koffman – Patient

Dr. Koffman offers his best tips for managing the psychological impact of CLL. … Read more

Bulldozing a New Trail through the CLL Landscape

By Brian Maxson – Patient

I’m Brian Maxson, and this is my CLL journey, what’s happened so far and what I’m doing with it. … Read more

Cajun Gingerbread

A recipe by Patricia Koffman

The Cajun Gingerbread recipe first came into our lives when we sent our sixth and fourth grade daughters to a summer cooking classRead more

Ask & Tell

Results of the CLL Society 2019 Website Survey

During June through November 2019, the CLL Society conducted a poll among readers of The CLL Society Tribune. … See the results!

Our Next Survey: Your Biggest Wish!

In this Season of Miracles, please share your BIGGEST WISH for what the CLL Society should be doing or working towards in 2020. … Read more!

Subscribe to The CLL Tribune

CLL Tribune is accepting all forms of storytelling, including articles, poems, drawings, or other creative mediums. Contribute today!

Email support@cllsociety.org with your interest!

Did You Know?

CLL Facts

By Brian Koffman, MD

There is much reason to be optimistic as a CLL patient as we come to end of another year of great advances to treat CLL. … Read more

The Basics

Vaccinations in CLL

By Chris Pleyer, MD

Patients with chronic lymphocytic leukemia (CLL) have an increased risk of infection due to a weakened immune system. At least one third of CLL patients are expected to have one or more major infections during the course of their disease. … Read more

Beyond The Basics

Normal Lab Values

By Susan Leclair, PhD, CLS (NCA)

Getting a laboratory test result really has no meaning without having something with which to compare it. Its meaning comes from comparing it to reference values, which are the values expected for a group of otherwise healthy persons. … Read more

Conference Coverage

iwCLL 2019: Neil Kay MD on Complex Karyotype in CLL

By Brian Koffman, MD

At the iwCLL (International Workshop on CLL) held this past October in Edinburgh, Scotland, I caught up with Dr. Neil Kay to discuss some of the recent research on predictive and prognostic markers in chronic lymphocytic leukemia presented at the biennial conference. … Watch The Interview

Ask The Doctor

Questions submitted by readers and answered by our CLL Society experts

By Richard Furman, MD

Dr. Richard Furman of Weill-Cornell Medical College answers readers’ questions submitted to the CLL Society…Read more

Ask The Pharmacist

Questions submitted by readers and answered by our CLL Society experts

By Thomas E Henry III, MBA, RPh, CPh

Thomas E Henry III, MBA, RPh, CPh from Burlington Consulting Associates answers readers’ pharmacy questions submitted to the CLL Society…Read more

Ask The Lab Scientist

Questions submitted by readers and answered by experts in the field

By Susan J. Leclair, PhD, CLS (NCA)

Susan J. Leclair from University of Massachusetts Dartmouth answers readers’ lab scientist questions submitted to the CLL Society…Read more

We’d like to thank the supporters of The CLL Tribune:

The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.