Quarter 4 2021: Volume 7 Issue 4

Welcome to the Fourth 2021 Issue of The CLL Society Tribune:
Caregiver Special Edition

This 2021 fourth quarter CLL Society Tribune invites you into the minds and hearts of three CLL caregivers. Each of our caregiver writers are family members of the person for whom they care. Each is strongly committed to vigilance. Having already been surprised once, when the person for whom they care was diagnosed with CLL, they are now laser focused on watching everything. Sensitive to potential disease status changes in their loved ones, they follow the latest CLL research, arrange 2nd opinions, attend webinars, join groups, share helpful resources with others, monitor the news on COVID-19, and in many other ways, support the CLL patient’s wellbeing. We thank them for sharing their stories.

We round out this issue with caregiver statistics shared by Dr. Allison J. Applebaum, results of CLL Society’s Ask & Tell Patient & Caregiver survey, fascinating facts from Part 3 and Part 4 of our series on immunity, as well as a nice write-up by pharmacist Tom Henry of our ASH 2020 interview with Dr. Matthew S. Davids regarding his clinical trial using of acalabrutinib plus venetoclax plus obinutuzumab (AVO) for CLL.

Stay safe. Stay strong.

Happy Holidays to all!

Patty Koffman
Co-Founder & Communications Director
CLL Society

Living Well With CLL

Life Is Good, Even With CLL

By Victoria Yasova – Caregiver

It was five summers ago when we found out my husband had blood cancer, the kind for which we must “wait and watch”. As two people who always plan ahead and prefer to take care of things right away, the waiting without a plan of attack was the hardest thing. Read more

Joining the Journey

By Katie Patterson – Caregiver

My role as a care partner is to continue to learn all about CLL. Thus, I have watched several of the live patient forums and from the online archive, and have mentioned them to new members. Read more

Don’t Call Me a Caregiver

By Nancy Simpson – “Supporter, Researcher, Cheerleader”

I’m a supporter, a researcher, a cheerleader.  I supply an extra set of hands and an extra set of ears when needed. I am there to listen to tough discussions. I am there to enjoy each and every good day with my husband. This is where I see my role. Read more

Podcast

Caregiver Lifehacks: CLL Edition Podcast

CLL Society and OffScrip Health partnered to produce a three-episode podcast series in an intimate roundtable format. Caregivers share their high points, their low points and everything in between. Sometimes sad, mostly funny, always real emotions and authentic experiences. Listen here

Ask & Tell

Survey Results: Patient and Caregiver Feedback

Our third quarter reader survey results regarding the COVID-19 pandemic and treatment decisions, mental health challenges, and taking medication. Read more

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Did You Know?

CLL Facts:
Caregiver Statistics

By Brian Koffman, MDCM (retired), MSEd

Important statistics about caregivers that we are sharing with you below. Read more

The Basics

Introduction to Immunity Part 3

By Susan J. Leclair, PhD, CLS (NCA)

This is the third part of Dr. Leclair’s introduction on the ways that your immune system tries to protect you. She will review immunocompetency and immunocompromised states.  Read more

Beyond The Basics

Introduction to Immunity Part 4: Testing

By Susan J. Leclair, PhD, CLS (NCA)

What tests to do? With an overall understanding of how the system functions, we can look at what testing can be done and what it can tell us. Read more

Ask The Experts

Questions submitted by readers and answered by our CLL Society experts. Read more

Conference Coverage

ASH 2020: Dr. Davids Discusses Phase II AVO Study of Acalabrutinib + Venetoclax + Obinutuzumab for Chronic Lymphocytic Leukemia (CLL)

By Thomas E. Henry III, MBA, RPh, CPh

Updated results from the study of CLL triplet combination AVO – acalabrutinib, venetoclax and obinutuzumab.

Watch the Interview

CLL Society is looking for your contribution including articles, storytelling, poems, drawings, or other creative mediums. Please share!

Email support@cllsociety.org with your interest!

The CLL Society Tribune is made possible in part by grant support from Adaptive Biotechnologies, Pharmacyclics, and Janssen.

 

DISCLAIMER
The CLL Society does not provide medical advice or endorsements. Unless explicitly stated otherwise, all content in the CLL Tribune is the opinion or information of its author, not the CLL Society. This newsletter is for reference and educational purposes only and is not a substitute for medical advice. We do not guarantee the accuracy of any of the materials. Always contact your own doctor or other professional healthcare provider if you have any questions concerning your or your family’s health. Everyone’s circumstances are different.