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The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

CLL Society

WHAT’S NEW

March 19, 2024

Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.

We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.

COVID-19 Updates

NIH Home Test to Treat Program

Now there is a new trial (SUPERNOVA) of an updated mix of monoclonal antibodies that hopes to provide durable protection against present and future variants of concerns.

Living with CLL

If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.

CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.

CLL and Chaplaincy

Dr. Brian Koffman spoke with Dr. Gregory Plotnikoff, a physician specializing in complex, chronic, mysterious illnesses. They discussed the role of diet and nutrition in CLL.

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SPECIAL FEATURE: CLL Society’s Emotional and Spiritual Advocate Program

https://cllsociety.org/programs-and-support/the-cll-society-emotional-and-spiritual-advocate-program/CLL Society is pleased to announce the launch of our new Emotional and Spiritual Advocate Program with board-certified chaplain Rabbi Rebecca Kamil. Rabbi Kamil invites patients and care partners to connect on a variety of topics and can support individuals and families regardless of their spiritual and religious affiliations or beliefs. CLL Society is committed to promoting the emotional and mental well-being of our community, and we invite you to take advantage of this new resource.

To learn more about chaplaincy and the support chaplains can provide to those in the CLL / SLL community, read Rabbi Rebecca Kamil’s article.

Complete a Community Profile with CLL Society

Complete a Community Profile with CLL Society

CLL Society wants to better understand the experiences and characteristics of CLL in the individuals we serve and are asking for your participation in completing a profile questionnaire.

The information you provide will help CLL Society enhance our efforts, education, and programs in a manner that better fits the needs of our community. Additionally, de-identified demographic and CLL-specific data about our community can help us demonstrate the valuable support we provide to individuals impacted by CLL / SLL to expand our work.

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ADVOCACY AND POLICY

UPCOMING EVENTS

Wednesday, March 6th at 10:30 AM PT / 1:30 PM ET

Join CLL Society and PlatformQ Health live for a virtual event with an expert panel including Drs. Matthew Davids, Danielle Brander, and Brian Koffman to learn how patients and their care partners can work with their healthcare team on therapy goals. Topics will include cytogenetic testing for CLL, how test results impact treatment choices, factors that determine initial treatment, treatment options for relapsed/refractory CLL, and more. Learn more and register here.

Tuesday, March 19th at 9:30 AM PT / 12:30 PM ET

Join CLL Society and Dr. Onyemaechi Okolo-Taku, who will discuss a variety of integrative oncology approaches including diet, exercise, stress reduction, supplements, meditation, and more. CLL patient advocate Stephen Brown will share his personal story of being diagnosed with CLL and the four guideposts that have helped him along his journey. Learn more and register to attend: Navigating Integrative Medicine Approaches in CLL.

On-Demand Replay

If you missed the recent webinar, Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months, you can catch the on-demand replay of here!

If you missed the recent Q&A-style Facebook Live Event, “Ask Me Anything” with Dr. Sameer Parikh and patient advocate Jeff Folloder,  you can catch the on-demand replay of here!

Watch Why Policy Matters – Understanding How Your CLL / SLL Journey is Affected to learn the importance of policy decisions for individuals with chronic lymphocytic leukemia and small lymphocytic lymphoma, CLL / SLL.

Treatment Updates

Equitable Access and Regulatory News