CLL Society Official Statements
CLL Society has authored Official Statements to help you help your healthcare providers understand CLL patients’ unique vulnerabilities to COVID-19 and our higher risks of serious complications.
- Explaining to Family and Friends Why the CDC Guidelines for Those Vaccinated Against COVID-19 Do Not Apply to CLL Patients
- CLL Society’s Official Statement Concerning SARS-CoV-2 Vaccine in CLL patients 03/26/2021
- CLL Society’s Official COVID-19 Triage Statement
- CLL Society’s Official Statement Concerning CLL Patients Working and Traveling During the COVID-19 Pandemic (8/16/2020 update)
- CLL Society’s Official Statement Concerning Routine Trial and Clinical Visits for CLL and other Blood Cancer Patients During the COVID-19 Pandemic
CLL Society COVID-19 Virtual Community Meetings
Thanks to all who attended our Virtual Community Meetings! In case you couldn’t make it or would like to review the discussions again, we’ve provided convenient links to our archives below.
Past archived meetings:
Managing COVID-19 Re-Entry
Watch this expert video series as Dr. Koffman speaks with CLL doctors on topics such as educating the household, managing re-entry for high risk/exposure workers, the use of masks, and more.
- Managing Re-Entry: Educating the Household
- Managing Re-Entry: Managing Re-Entry for high-risk, high-exposure workers
- Managing Re-Entry: When Will It Be Safe for CLL Patients?
- Managing Re-Entry: Clinical Trial Effects of Ibrutinib on CLL patients with COVID-19
- Anthony Mato – COVID-19 severity and mortality in CLL patients
- Brian Koffman – Unmasking the Mystery
When appropriate, the CLL Society will be posting updates and background information on the present Coronavirus pandemic focusing on reliable primary sources of information and avoiding most of the news that is not directly from reliable medical experts or government and world health agencies.
- CDC Graphic Guidance on Safer Activities During the COVID-19 Pandemic: How it Applies to CLL Patients
- Cancer Patients Worry Over Wait for Second COVID Shot
- Dr. Rick Furman Discusses COVID-19 and the Vaccines in CLL Patients, Live at the New York City CLL Society Support Group Meeting
- Interim Public Health Recommendations for People Fully Vaccinate against COVID-19: What They Mean for the CLL Population
- FDA authorizes new test, built with machine learning, to detect past COVID-19 infections
The Big Picture: Comments, Coping Strategies, and Musing on COVID-19
This medical pandemic may bring light to some corners of our society, our health systems, and own psyches that are used to living in the dark. And that is a good thing.
- Tech Tips to Help Score a Covid-19 Vaccine Appointment at CVS, Rite Aid, Walgreens and More
- Mazen Dudar puts a human face on CLL and Covid-19 and reminds us that some CLL patients have mild disease and do well.
- We are all in this together.
- When you say coronavirus will only kill the vulnerable, you’re talking about me.
Ask the Experts about Coronavirus
We are very grateful to Dr. Furman for his generosity in answering the many questions he receives. We also are thankful to have Tom Henry for pharmacy questions, Dr. Susan Leclair for all things lab, and Dr. Ed Ratner for your questions re: palliative and end of life care. Have a question? Scroll to the CLL Toolbox section at bottom of this page and choose the appropriate button.
Remember that we cannot give medical advice and any suggestions should be reviewed with your treating doctors.
CLL Society Postponements or Rescheduling
We continue to diligently monitor the evolving issues related to the coronavirus (COVID-19). Out of an abundance of caution, CLL Society canceled all live events, both support group meetings and educational programs beginning in March 2020. Support group meetings and educational programs have been moved to a virtual format. Please check the links below to find meetings and events that you can participate in, virtually.
Expert Access Program
Telemedicine is a great tool to receive a second opinion without going to the hospital or your doctor’s office. You can see an expert CLL physician, at no cost, for a second opinion using our easy online platform, apply here. This program is open to all U.S. patients with a CLL diagnosis. If you have used the program before, you may reapply if you need new clinical advice.