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The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

CLL Society - Policy Institute

CLL Society’s Policy Institute serves as the formal advocacy engine of CLL Society. The Policy Institute is designed to advocate on behalf of our patient and caregiver community surrounding policy issues that may potentially affect those living with CLL and SLL. We are relentlessly working behind the scenes with key government officials to make our voices known and direct change on key legislative initiatives. 

CLL Society's Policy Institute is Focused on Three Key Pillars:

Needs of the Immunocompromised

COVID-19 shed light on the need for CLL Society to regularly engage with government officials on behalf of our immunocompromised community. Our work on behalf of the estimated seven million immunocompromised Americans will not be over when the world transitions from the pandemic to the endemic phase.


Regulations that ensure access to adequate and affordable healthcare for all individuals living with CLL and SLL is of the utmost importance. We must also advocate to protect equitable and quality cancer care for every person, regardless of their demographic, socioeconomic status, or geographic location.


It is crucial to address legislative efforts that may potentially slow down the development of better medications to treat CLL and SLL. We must continually seek to improve processes and increase FDA engagement with patient advocacy organizations through their Oncology Center of Excellence.

Sign Up for CLL Society's Policy Action Alerts

Communicating with government officials is an important way in which we can use our collective voices to advocate for change. By signing up for Policy Action Alerts, you will receive a notification via email about an opportunity to make your voice known to elected officials. We will provide you with a description of the policy issue, why it is important to those affected by CLL/SLL, and provide some standardized email language that you can then edit and personalize before sending it along to your representatives.

CLL Society's Policy Institute Supporters

CLL Society’s Policy Institute Partners