CLL Society's Policy Institute
CLL Society's Policy Institute is Focused on Three Key Pillars:
Regulations that ensure access to adequate and affordable healthcare for all individuals living with CLL and SLL is of the utmost importance. We must also advocate to protect equitable and quality cancer care for every person, regardless of their demographic, socioeconomic status, or geographic location.
It is crucial to address legislative efforts that may potentially slow down the development of better medications to treat CLL and SLL. We must continually seek to improve processes and increase FDA engagement with patient advocacy organizations through their Oncology Center of Excellence.
Protecting Innovation in Rare Cancers (PIRC) Coalition
In 2023, CLL Society’s Policy Institute was proud to launch the PIRC Coalition, which focuses on the needs of the rare cancer community in relation to the relevant provisions of the Inflation Reduction Act. More information about PIRC can be found at rarecancerira.org.