The CLL / SLL Patient Perspective
Benefit from the real-world experience of fellow patients and caregivers as they share what they learned from participating in clinical trials.
For video testimonials about clinical trials view below.
My advice is to carefully consider if a clinical trial is right for you when the time comes to treat your CLL / SLL. I’m so glad that I chose the clinical trial route for my frontline treatment
For in-depth information visit these important articles.
CAR T-Cell Therapy Trial at UCLA Health Did What Years of Other Treatments Could Not for a Non-Hodgkin Lymphoma (NHL) Survivor
CAR T-cell therapy trial at UCLA Health did what years of other treatments couldn’t for a non-Hodgkin lymphoma (NHL) survivor
On March 22, 2018, I was an outpatient at the Seattle Cancer Care Alliance where I was transfused with my own T-cells that had been harvested a few weeks earlier, then genetically reengineered to attack my cancer, multiplied manyfold, then reinjected into my bloodstream to rest up, grow again, and
I am very pleased to report I am still MRD Undetectable (UMRD) in the blood after 3 years on a Placebo in the Captivate clinical trial!! I believe I am in the Placebo arm of a trial, because the Imbruvica side effects totally went away. Imbruvica can have some side effects; my nails and fingertips have gotten so much better!
By Julia Walsh – Patient When I was diagnosed in 2013, my treatment options were limited. I saw a community hematology-oncology doctor who told me that I would likely receive FCR, or chemotherapy, as my first line of treatment. And he was correct – the new targeted inhibitors like ibrutinib
By Doug Olson – Patient My name is Doug Olson and I am a CLL survivor with a rather unique story to tell. It is truly a privilege to have an opportunity to share my journey with CLL with all of you who visit this wonderful web site. However,
By Linda Brandt Myers – Patient ITHACA, N.Y. In May 1994, on the eve of my marriage to my husband, Sandy, I was diagnosed with chronic lymphocytic leukemia (CLL). I remember hearing my oncologist tell me I had ten years to live (what he actually said was more like: “The
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