The CLL / SLL Patient Perspective
Benefit from the real-world experience of fellow patients and caregivers as they share what they learned from participating in clinical trials.
For video testimonials about clinical trials view below.
Christina Rodriguez Fuller – Patient
I was diagnosed in October 2018. My journey led me to a local hematologist, then a CLL specialist in Houston before settling with a CLL specialist in Dallas where I participated in the ECOG trial.
Patient Advice – Paying it Forward – Doreen Zetterlund
My advice is to carefully consider if a clinical trial is right for you when the time comes to treat your CLL / SLL. I’m so glad that I chose the clinical trial route for my frontline treatment
For in-depth information visit these important articles.
Update 7.75 Years – Captivate Trial
I am pleased to give a 7.75 year update.
I was first diagnosed in January of 2016. You can see my 3 year article update here. I unfortunately progressed quickly having large lymph nodes and my FISH test revealing 55% 17p deleted and trisomy 12.
CAR-T: A Success Story
By Paul Bildstein – Patient I was diagnosed in 2009 at age 60 with CLL (Trisomy 12, unmutated) after a routine blood test. Initially on watch and wait, I was treated with FCR in 2012. The remission only lasted a year and by then I was also 17p deleted. Ibrutinib
CAR T-Cell Therapy Trial at UCLA Health Did What Years of Other Treatments Could Not for a Non-Hodgkin Lymphoma (NHL) Survivor
CAR T-cell therapy trial at UCLA Health did what years of other treatments couldn’t for a non-Hodgkin lymphoma (NHL) survivor
CAR-T Three Years Later: Dr. Brian Koffman Celebrating a Durable Remission
On March 22, 2018, I was an outpatient at the Seattle Cancer Care Alliance where I was transfused with my own T-cells that had been harvested a few weeks earlier, then genetically reengineered to attack my cancer, multiplied manyfold, then reinjected into my bloodstream to rest up, grow again, and
Update 3.3 Years Mark Hoffman Captivate Trial, 4.3 years with CLL
I am very pleased to report I am still MRD Undetectable (UMRD) in the blood after 3 years on a Placebo in the Captivate clinical trial!! I believe I am in the Placebo arm of a trial, because the Imbruvica side effects totally went away. Imbruvica can have some side effects; my nails and fingertips have gotten so much better!
Why I Participate in a Clinical Trial
By Julia Walsh – Patient When I was diagnosed in 2013, my treatment options were limited. I saw a community hematology-oncology doctor who told me that I would likely receive FCR, or chemotherapy, as my first line of treatment. And he was correct – the new targeted inhibitors like ibrutinib
A Breakthrough in Cancer Treatment – A Patient’s Story
By Doug Olson – Patient My name is Doug Olson and I am a CLL survivor with a rather unique story to tell. It is truly a privilege to have an opportunity to share my journey with CLL with all of you who visit this wonderful web site. However,
Could a CLL Clinical Trial Save My Life? What Were the Risks?
By Linda Brandt Myers – Patient ITHACA, N.Y. In May 1994, on the eve of my marriage to my husband, Sandy, I was diagnosed with chronic lymphocytic leukemia (CLL). I remember hearing my oncologist tell me I had ten years to live (what he actually said was more like: “The
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