CLL Patient Surveys
Surveys are your chance to help the community that treats CLL to better understand what is important to the patient and the caregiver. Some are short. Some are long. You may even get paid for doing some of them!
CLL Society wants to hear from you. Part of our organization’s mission is to increase patient education and research. We need your support to increase the body of knowledge for patients and caregivers affected by CLL. Please see current surveys below that help us aggregate information on a variety of topics to inform our field and CLL Society, so we can better serve this community.
CLL Society Community Profile Questionnaire
As a valued member of our community, CLL Society is asking for your participation in completing a profile questionnaire.
All individuals who access the services of CLL Society are encouraged to complete the questionnaire as doing so will aid CLL Society and have benefits for you as well. Please note, a portion of the questionnaire is specifically intended to be answered by those living with CLL / SLL.
CLL Society Support Group Member Survey
If you attend one of our virtual support groups, we want to hear from you! Please help us continue to bring you CLL Society Support Groups as a resource for education and support by completing our brief, end-of-the-year survey. Your feedback helps us demonstrate these groups’ value and impact and highlights ways we can improve.
Paid Research Opportunities
Invivyd’s COVID-19 Prevention and Registry Study
If you have a condition that indicates you are immunocompromised, and you have received a COVID-19 booster vaccine in the last 6-7 weeks, or plan to receive a booster in the near future, you may be eligible for free antibody testing and the opportunity for future participation in COVID-19 prevention studies. Compensation includes a free post booster antibody test and $25 in the form of a virtual gift card. Learn more here.
Are You Receiving Treatment for a Blood Cancer Diagnosis? Join a 20-Week App-Based Wellness Study
Mays Cancer Center is seeking blood cancer patients, ages 18 and up and currently undergoing active treatment, to participate in a National Institutes of Health-funded research study lasting for 20 weeks total.
The purpose of the study is to test an app-based wellness intervention for chronic sleep disturbances among blood cancer patients. We will be asking eligible and consented study participants to use a smartphone-based wellness app for 10 minutes per day for a total of 8 weeks. Additionally, we will ask that study participants complete in-person blood draws and online surveys at 3 different time points over the course of the 20-week study (baseline, after 8 weeks, and after 20 weeks). Finally, we will also ask that study participants wear an Oura Ring daily and complete a brief daily sleep diary for 8 weeks and then again for 1 more week during week 20.
Participants can earn up to $100 for completing all study-related measures. You will need to meet a range of eligibility criteria to be considered eligible to participate in this study. Participation is voluntary.
Complete the eligibility survey here.
If you have questions, please contact by phone (210-450-8253) or email [email protected].