CLL Patient Surveys
Surveys are your chance to help the community that treats CLL to better understand what is important to the patient and the caregiver. Some are short. Some are long. You may even get paid for doing some of them!
CLL Society wants to hear from you. Part of our organization’s mission is to increase patient education and research. We need your support to increase the body of knowledge for patients and caregivers affected by CLL. Please see current surveys below that help us aggregate information on a variety of topics to inform our field and CLL Society, so we can better serve this community.
How much do you know about the critical tests that can predict which patients will do well on or fail with certain medications? Prognostic testing should be done before each and every treatment decision; share your experience and test your knowledge by completing the Test Before Treat™ Survey!
Paid Research Opportunities
Share Your Experiences with Chronic Lymphocytic Leukemia (CLL) – Paid Survey Opportunity
Pinpoint Patient Recruiting, a market research recruitment company, is searching for people who have been diagnosed with CLL to participate in a 60-minute online interview about their experiences with treatment.
If you are taking (or have previously taken) Calquence, Rituxan, Bendeka, or Imbruvica and have enrolled in any type of manufacturer-provided patient support programs, you may be eligible to participate. Those who qualify and participate in the study will receive $125 as a thank you. All information and responses will remain confidential.
To see if you qualify for the study or to get more information, please visit www.pinpointpatientrecruiting.com/cll-interview-cllsociety or contact Julie Knell at [email protected].
Invivyd’s COVID-19 Prevention and Registry Study
If you have a condition that indicates you are immunocompromised, and you have received a COVID-19 booster vaccine in the last 6-7 weeks, or plan to receive a booster in the near future, you may be eligible for free antibody testing and the opportunity for future participation in COVID-19 prevention studies. Compensation includes a free post booster antibody test and $25 in the form of a virtual gift card. Learn more here.
Are You Receiving Treatment for a Blood Cancer Diagnosis? Join a 20-Week App-Based Wellness Study
Mays Cancer Center is seeking blood cancer patients, ages 18 and up and currently undergoing active treatment, to participate in a National Institutes of Health-funded research study lasting for 20 weeks total.
The purpose of the study is to test an app-based wellness intervention for chronic sleep disturbances among blood cancer patients. We will be asking eligible and consented study participants to use a smartphone-based wellness app for 10 minutes per day for a total of 8 weeks. Additionally, we will ask that study participants complete in-person blood draws and online surveys at 3 different time points over the course of the 20-week study (baseline, after 8 weeks, and after 20 weeks). Finally, we will also ask that study participants wear an Oura Ring daily and complete a brief daily sleep diary for 8 weeks and then again for 1 more week during week 20.
All study participants that finish the 20-week study will receive $75 in compensation. If you are interested in learning more about or joining this study, please contact us by phone (210-450-8253) or email [email protected], or visit this link to complete the eligibility survey: https://uthscsa.co1.qualtrics.com/jfe/form/SV_5gRiOOJQ6fW7srQ. You will need to meet a range of eligibility criteria to be considered eligible to participate in this study. Participation is voluntary.