Surveys

Surveys are your chance to help the community that treats CLL to better understand what is important to the patient and the caregiver. Some are short. Some are long. You may even get paid for doing some of them!

CLL Society wants to hear from you. Part of our organization’s mission is to increase patient education and research. We need your support to increase the body of knowledge for patients and caregivers affected by CLL. Please see current surveys below that help us aggregate information on a variety of topics to inform our field and CLL Society, so we can better serve this community.

CLL Society Clinical Trials Survey

CLL Society is looking for CLL patients who would be willing to share their experiences with clinical trials. Please complete the brief survey to provide additional information.

Test Before Treat™ Survey

How much do you know about the critical tests that can predict which patients will do well on or fail with certain medications? Prognostic testing should be done before each and every treatment decision; share your experience and test your knowledge by completing the Test Before Treat™ Survey!

Paid Research Opportunities

 

Patient Wellbeing Study Opportunity for CLL Patients

Blue Note Therapeutics is conducting a fully virtual study of two digital apps that aim to improve the mental and physical wellbeing of patients with cancer.

  • This study will enroll up to 415 adult participants who have been diagnosed with stages I-III cancer and who are currently receiving systemic treatment (radiation, chemotherapy, and/or immunotherapy), have received systemic treatment within the last six months, or have an established treatment plan that includes some form of systemic treatment.
  • The goal of this research is to test how well two different apps improve mental and physical wellbeing.
  • Participating involves using one of the two treatment apps and completing four surveys over 10–12 weeks. Participants will be paid $200 for completing the study, which can be done entirely from home.

Learn more about this study, and find out whether you are eligible to participate!


Patient Preference Study Survey Opportunity

CLL Society is collaborating with RTI-Health Solutions (RTI-HS), a nonprofit research organization in North Carolina, to learn about the perspectives and treatment preferences of individuals with chronic lymphocytic leukemia (CLL). The study is being conducted on behalf of a pharmaceutical company to ensure that new treatments best reflect patients’ needs.

CLL patients may be eligible to take part in this online survey. Our goal is to learn more about the aspects of treatment that matter most to patients with CLL. Make your voice heard about your treatment priorities by taking part.

Eligible participants will be paid for completing the 30-minute online survey. If you are interested in participating or would like to receive further information about the study, please click here: CLL Screener. You will be required to enter your email and phone number to be screened for eligibility.

If you have any questions about this survey, please contact Global Perspectives at gp@global-perspectives.com.


Paid Survey Study 

The Psycho-Oncology Lab at Hunter College (CUNY) is seeking research participants for a paid survey study of cancer survivors between the ages of 18 and 39. Eligible participants will receive a $20 Amazon gift card. To see whether you are eligible, complete the online screener here.

ADDITIONAL READING

CLL Society is collaborating with RTI-Health Solutions (RTI-HS), a non-profit research organization in North Carolina, to learn about the perspectives and treatment preferences of individuals with Chronic Lymphocytic Leukemia (CLL). The study is being conducted on behalf of a pharmaceutical company to ensure that new treatments best reflect patients’
Q2 Reader Poll Results: Shared Decision Making During March through June 2019, the CLL Society conducted a poll among readers of The CLL Society Tribune. There were 84 complete responses with 94% of the responses from patients and 6% of the responses from caregivers. The respondents included 60% who are