Mental and Physical Health Resources
Taking care of and paying attention to both your mental and physical health is important, especially because having a CLL/SLL diagnosis, or having a loved one diagnosed with chronic illness, can be an added challenge. The COVID-19 pandemic has only increased stressors that have led to anxiety, depression, and isolation. Below are some helpful resources and materials about this important topic.
Diet and Exercise
- Health and Wellness: Beyond the Medicine Cabinet
A diagnosis of CLL/SLL can feel like your body is attacking itself, so what can you do in defense? Health and wellness such as physical activity, eating nutritiously, supplements, and stress reduction are important activities to help strengthen your immune system and lower your risk of additional health issues or co-morbidities.
- Exploration of Diet and Gardening by Albie Suozzi
- The Impact of Diet on CLL by Glenn Sabin
- Food For Thought and For Health… Jay’s Awesome Macrobiotic CLL Adventure! by Jay Blatt
- Dr. Andrea Sitlinger on High-Intensity Interval Training for Older Adults with Chronic Lymphocytic Leukemia (CLL)
Mindfulness and Stress Reduction
- Mind Full or Mindful by Farahana Surya Namskar
- Fishing for Mindful Meditation by Dr. La Verne Abe Harris
CLL and Psychological Impact
- A Psychological Perspective: Dealing with the CLL Emotional Roller Coaster
A CLL diagnosis can take you on an emotional roller coaster. CLL patients can face the stress of uncertainty, whether they are making important health decisions based on incomplete and conflicting information, or they are in “watch and wait” and experience the anxiety of inaction.
- CLL and the Emotional Impact of Watchful Waiting by Glenn Sabin
Combatting Isolation and COVID-19
If you are not already, CLL Society encourages you to join a CLL-specific Support Group which meets virtually once a month.
- Interview with 20-Year CLL Survivor Terry Evans about Joining Support Groups
- Why are Men Hiding? by Peter Titlebaum
- Pandemic Mental Health for the Immunosuppressed by Nancy Marlin
- CLL and COVID-19: Uncharted Waters by Nancy O’Brien Simpson
- Joy in the Time of Coronavirus by Nancy O’Brien Simpson
Too often caregivers can feel invisible as the patient’s physical and emotional journey is the central story. Yet caregivers are vital in addressing challenges and providing support.
- My Privilege by Susan Chappell
- Joining the Journey by Katie Patterson
- Don’t Call Me a Caregiver by Nancy Simpson
Additional Mental Health Resources
Complete an Online Screening:
If you are unsure if your feelings warrant additional action, you can complete a screening below. Please note that this resource is not a diagnostic tool, and mental health disorders can only be diagnosed by a licensed mental health provider or doctor.
Reach Out and Talk to Someone:
If you need to talk to someone about your mental health and don’t feel like you can reach out to someone in your network, there are many good options.
Mental Health America has a national network of Warmlines, which are free and confidential. This is a resource you can call upon when not in crisis. However, if you are in crisis, they can help connect you to additional resources. Please find additional information here.
National Alliance on Mental Illness (NAMI) provides a HelpLine for anyone who needs to talk to someone about their mental health. They can be reached by phone, email, or chat. Please find additional information here.
If you are experiencing a mental health crisis, please find resources for both the United States and Canada below:
- In the United States
- National Suicide Prevention Lifeline – Call at 1-800-273-TALK (8255)
- National Suicide Prevention Lifeline – Call, Text, or Chat by dialing 988
- In Canada
- Crisis Services Canada – Call at 1-833-456-4566
- Crisis Services Canada – Send a text to 45645
If you are a United States Veteran, you can find additional mental health resources at the VA here.
When appropriate, the CLL Society will post updates and background information on the present COVID-19 pandemic from reliable primary sources. Information that is not directly reported by reliable medical experts or government and world health agencies will be avoided.