Stories and Testimonials

There are some things that only one patient can tell another. This is where you will find patients and caregivers sharing their most personal stories and their best advice about how they have survived their illness.

FEATURE

One Patient's Powerful Story

My friend and fellow CLL patient and long-time member of our local Orange County CLL Support Group, Terry Evans shares his real-life experience with being in clinical trials. Terry offers practical advice about why and how to choose a clinical trial.

Thank you, Terry.

Terry is giving us the personal side of the equipoise issue raised in clinical trial designs.

Please read Dr. Susan O’Brien’s blunt ASCO 2013 post citing the unreasonableness and tragedy of disallowing crossovers in certain clinical trials.

We are happy to say that since the scare and stress that Terry faced in the RESONATE trial, today, crossovers are becoming the norm in cancer trials.

ADDITIONAL READING

I had always thought that a cancer support group was probably useful for some, but definitely not for me. Since my diagnoses of CLL/SLL about 11 years ago, my sole interest has been in getting information, current trends in treatment, potential new drugs, clinical trials, and trial results.
Stephen Feldman, a fellow chronic lymphocytic leukemia (CLL) thriver since his diagnosis in 2014, has been playing the guitar since he was a kid. For him, singing and playing music have always provided a soothing and healing experience. Although his consistency with playing has waxed and waned over the
Eight years ago this month, I was diagnosed with chronic lymphocytic leukemia (CLL). My world turned upside down. I knew nothing about CLL but had to get smart on the subject. And I did this with the help of good doctors and organizations such as the CLL Society.
The purpose of this article is to share how to maintain a positive attitude through a cancer journey. Understand, this is one patient’s perspective. Having been an athlete my whole life, I realize the power of the mind. While I’m not able to change what’s happening to me inside