Smart Patients Get Smart Care™

The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

Stories and Testimonials

There are some things that only one patient can tell another. This is where you will find patients and caregivers sharing their most personal stories and their best advice about how they have survived their illness.

FEATURE

Patient Advice - Paying it Forward

CLL Society asked CLL / SLL patients what advice they have from their own personal journey that they would like to share with people recently diagnosed with CLL.

We received great advice and we are sharing it with you! Please check out this page for short videos of patient advocates sharing what they wish they had known or prepared for so you will be ready too.

Patient Stories

Traveling to Africa, Asia, Amsterdam, or Acadia National Park in Maine: Lessons Learned While on the Road With CLL (Chronic Lymphocytic Leukemia)

Eager to do revenge travel? In a post-COVID pandemic world, we all feel the urge to travel. However, no matter where or when you’re traveling, reducing the risks to our weakened immune system is crucial. For anyone with chronic lymphocytic leukemia or small lymphocytic lymphoma (CLL / SLL), either in watch and wait or in treatment, taking various precautions can mean the difference between a beautiful experience and a miserable one. The more you can reduce travel risks, the more rewarding the trip.

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Support Group?  Nah, Not for Me

I had always thought that a cancer support group was probably useful for some, but definitely not for me. Since my diagnoses of CLL / SLL about 11 years ago, my sole interest has been in getting information, current trends in treatment, potential new drugs, clinical trials, and trial results.

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Stephen Feldman - CLL Society

Stephen Feldman – Here Comes the Sun Cover

Stephen Feldman, a fellow chronic lymphocytic leukemia (CLL) thriver since his diagnosis in 2014, has been playing the guitar since he was a kid. For him, singing and playing music have always provided a soothing and healing experience. Although his consistency with playing has waxed and waned over the years, the joy music offers have never wavered.

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Elisabeth Wright Shares Her Journey with CLL

Eight years ago this month, I was diagnosed with chronic lymphocytic leukemia (CLL). My world turned upside down. I knew nothing about CLL but had to get smart on the subject. And I did this with the help of good doctors and organizations such as the CLL Society.

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Harness the Mind

The purpose of this article is to share how to maintain a positive attitude through a cancer journey. Understand, this is one patient’s perspective. Having been an athlete my whole life, I realize the power of the mind. While I’m not able to change what’s happening to me inside my body, how I think about it has an impact.

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ADDITIONAL READING

By Phil Witt – CLL Patient About halfway between 59-60 years of age, I remarked to my wife, “I must be getting old.” I was having trouble balancing life as a full-time Physical Therapist and chief farmhand on our small horse farm. Up till then doing both was not