Caregivers

CLL Society recognizes that caregivers are the unsung heroes of the CLL journey. This is their place.

FEATURES

CLL Society Webinar On Demand:

Giving Care to the Caregiver

Too often, caregivers can feel invisible, as the patient’s physical and emotional journey is the central story, and yet caregivers are vital in addressing challenges and providing support. Join CLL Society and Dr. Allison J. Applebaum in learning about the amount of time that caregivers dedicate to this role, the different types of stress and burdens experienced by caregivers, and how to address these issues. Watch now.

Caregiver Lifehacks: CLL Edition Podcast

CLL Society and OffScrip Health partnered to produce this three-episode podcast series that provides a home for the often-unspoken thoughts and feelings of the caregiver experience.

In this edition, our guests provide a range of care for loved ones with chronic lymphocytic leukemia (CLL). When it comes to caring for those with CLL, the experts in the field are not necessarily professionals. More likely, the real experts are the unpaid, unheralded loved ones and family members who are thrust into action. According to a recent study from AARP, one in five Americans are unpaid family caregivers, and we wanted to hear from them.

In an intimate roundtable format, we talk to the husbands, wives, parents, and children of people who have CLL. They share with us all of the various ways that they provide care. They talk about their high points, their low points, and everything in between—sometimes sad, mostly funny, always real emotions and authentic experiences. Listen now.

ADDITIONAL READING

Dr. Allison J. Applebaum, Associate Attending Psychologist in the Department of Psychiatry and Behavioral Sciences at Memorial Sloan Kettering Cancer Center (MSK), and Assistant Professor of Psychology in Psychiatry at Weill Cornell Medical College provided us with important statistics about caregivers that we are sharing with you below.
By Nancy Simpson – “Supporter, Researcher, Cheerleader” My husband has CLL. One day he was fit and healthy. The next, he was not. At age 64 he was diagnosed with CLL. As with most diagnoses, this came as a complete surprise nearly 10 years ago. I can’t stand the
By Victoria Yasova – Caregiver It was five summers ago when we found out my husband had blood cancer, the kind for which we must “wait and watch”. As two people who always plan ahead and prefer to take care of things right away, the waiting without a plan
By Pamela Zeiler – Patient My story begins in June 2014.  Within days after my daughter’s graduation from nursing school and my husband’s discharge from the hospital, I became very ill with C. Diff (clostridium difficile) colitis. Lab results indicated the presence of Chronic Lymphocytic Leukemia, a diagnosis bringing total