CLL Healthcare Providers

Although CLL is the most common blood cancer it is still an orphan disease. CLL treatment has changed radically in the last few years, and it is difficult for even dedicated experts to stay on top of the latest treatments. Having a true CLL expert leading the charge has been shown to have a survival advantage.

We’ve compiled a list to help you.

Find a local CLL expert if possible. Otherwise, consider traveling to a consult and establish a relationship or consider using our

CLL Society Expert Access™

ADDITIONAL READING

Be Prepared in Case COVID Hits – Rick’s Story
Soon after my retirement and relocation to Northern California, I had a “new patient” visit to establish medical providers in my new community. The new patient visit led to an obstructive sleep apnea diagnosis which resulted in the recommendation to have my tonsils removed. As part of the pre-operative
Patient, Know Thyself
Patient, Know Thyself Mark Hoffman is a long-time CLL patient advocate and facilitator of the CLL Society Patient & Caregiver Support Group in San Diego, CA. In this article from Cancer Health, Mark echoes the importance of the Test Before Treat™ campaign by sharing his story. When Mark was
David’s Story
(Expert Access & Test Before Treat™) This is just a brief note to tell you about the important impact you had on my treatment for CLL. Last November, through the Expert Access program sponsored by the CLL Society, you were kind enough to review my medical records and chat
Michelle’s Story
When I was first diagnosed in April 2018, my WBC was at 55k, my local Hematologist performed the FISH test and found out I had 11Q with loss of ATM, they told me that only made a difference in the type of treatment I would need and I probably
Heather’s Story
Diagnosed Aug 2018 as a 54-year-old female, with SLL via node biopsy. CT showed extensive lymphadenopathy, very bulky disease, particularly in mesentery. Bloodwork all in normal range. Had BMB in spring 2019 for purposes of FISH. Had been experiencing increasing fatigue and discomfort in gut. Pathologist decided not to
Gary’s Story
I question if my doctor should have genetic tested me before treating me with Bendamustine in December 2013 and if this was the cause of my developing theTP53 mutation after my initial diagnosis of 13q in 2008. After the Bendamustine treatments, I started on Ibrutinib in January 2014. Gary

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Newly Diagnosed

Patient Education Toolkit

Watch and Wait

Build Your Care Team

CLL Healthcare Providers

Symptoms

Basic Biology of CLL

Staging

Complications

CLL Testing & Imaging

CLL Diagnosis

Test Before Treat™

RECENT NEWS

When appropriate, the CLL Society will be posting updates and background information on the present Coronavirus pandemic focusing on reliable primary sources of information and avoiding most of the news that is not directly from reliable medical experts or government and world health agencies.