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CLL SOCIETY INC. – Privacy Policy – Last Updated September 28, 2022

CLL Society Inc.(“Company”)respects every visitor who uses this web site and other CLL Society online platforms (the “Site”) and understands that you are concerned about privacy. We have posted this Privacy Policy to let you know what kind of information we collect, how it is handled and with whom it may be shared. As we continue to develop the Site and take advantage of technologies to improve the services we offer, this Privacy Policy will likely change. We encourage you to refer to this Privacy Policy on an ongoing basis so that you understand the current policies that apply to the information you provide to us. Any updates to this Privacy Policy will be prominently displayed on the Site.

1. Applicability of this Privacy Policy

This Privacy Policy applies to all information collected by Company through the Site. Although the Site may provide links to third-party websites, such third party websites are not covered by this Privacy Policy. These links are provided for your convenience only, and Company assumes no responsibility for the privacy or security of information you provide to any third party through linked websites or any other means. “Third Parties” mean any person or entity other than Company and you.

2. What Information Company Collects

Company’s web server collects non-personally identifiable information from you during the course of your visit to the Site. This information may include general information regarding your Internet Service Provider and host, your IP address, the content on the Site you access, the platform operating system and web browser you use, and the date, time, and duration of your visit to the Site.

This information may be collected through the use of a “cookie.” Cookies are small text files that are stored on your hard drive to store your preferences. Cookies themselves do not contain any personally identifiable information. You can choose to refuse any cookie by following the procedure suggested by your particular web browser. You may delete Company cookies from your computer, but doing so may impair your use of the Site.

Company may also use “web beacons” on the Site from time to time. Web beacons are small pieces of code placed on a web page to track or monitor the behavior and collect data about the visitors viewing a web page. For example, web beacons can be used to count the users who visit a web page or to deliver a cookie to the browser of a visitor viewing that page.

Company may also use certain statistical analysis services, such as Google Analytics, to generate statistics in the aggregate about visitors to the Site. Google Analytics is a web analytics service provided by Google, Inc. (“Google”). Google Analytics uses cookies to analyze how users use the Site.

Company may also collect information from you through your voluntary submission. For instance, such information may be submitted (i) through your use of an online form to request products or materials, make a donation, or participate in event fundraising, (ii) through your use of an online form to register with Company to access and use certain portions of the Site, or (iii) by sending Company an email. In other cases, such information may be the content or information you post, such as blog comments or uploaded videos, through interactive or “social networking” portions of the Site (collectively referred to herein as the “Interactive Portions” of the Site). The information you voluntarily submit may include information which may be used to personally identify you, such as your name, physical address, telephone number, e-mail address, and/or credit card number.

3. How Company Uses the Information It Collects

Company uses information it collects to, among other things, process your requests and transactions, offer or furnish additional services, personalize the types of information you receive from Company, assess trends in the use of the Site, develop content and functionality that helps serve our users needs, and improve the services Company provides. If you provide personal information, Company may enter your name into our constituent database and contact you in order to:

– Complete voluntary surveys seeking feedback for quality and service improvement purposes.

– Supply you with information including cancer related health news, Company programs, events and services.

– Request voluntary time or monetary contributions to Company.

– Request your participation in a Company or affiliate sponsored research study.

Any information you submit using the Interactive Portions of the Site, even personally-identifiable information, may be automatically publicly displayed on the Site. You therefore should be very careful about providing any personally identifying information using the Interactive Portions of the Site.

Company’s use of the non-personally-identifiable information it collects through the Site is unrestricted. Company may sell or license non-personally-identifiable information or aggregated information (information derived from personally-identifiable information, but not containing any personally identifying details) to Third Parties.

In the event Company uses Google Analytics, the information generated by the cookie about your use of the Site (including your IP address) will be transmitted to and stored by Google on servers in the United States. Google will use this information for the purpose of evaluating your use of the Site, compiling reports on website activity for Company and providing other services relating to website activity and internet usage. Google may also transfer this information to Third Parties where required to do so by law, or where such Third Parties process the information on Google’s behalf. Google will not associate your IP address with any other data held by Google.

4. Use of Your Personally-Identifiable Information

Company will not use your personally-identifiable information in a manner different from that stated herein or at the time of collection (the “Purpose”) without first attempting to notify you via the last e-mail address Company has in its records. Your health-related information is privileged and confidential and will not be shared or released to any organization or business entity other than those affiliated with or working in conjunction with Company as follows:

– In connection with clinical trial matching services Company may provide, the Company may share your information with Third Parties providing relevant information and services. If requested, the Company will then contact you to discuss the details or provide further information.

– Company occasionally makes our constituent names and postal addresses available to other reputable non-profit organizations. Your name is only available to these carefully screened organizations for a limited time and it is de-identified, such that it is not associated with the Company. Other organizations will not have continued access to your name and address unless you choose to respond to their initial mailing.

– We occasionally hire other companies to provide limited services on our behalf. We will only provide those companies the information they need to deliver the service and prohibit them from using that information for any other purpose.

Company reserves the right at all times to: (a) use and disclose any information it reasonably believes necessary to satisfy any law, regulation, government request, court order, subpoena or other legal process; (b) edit or remove any information, in whole or in part, that in Company’s sole discretion is objectionable, disruptive to the Site or in violation of the Terms and Conditions; (c) use and disclose any information when Company believes it is necessary to prevent harm or injury, to prevent fraud, or to protect Company’s legal interests; and (d) use and disclose any information in connection with an investigation of suspected or actual illegal activity.

Company may also transfer personal information in the event we transfer all or a portion of our operations. Should such an event occur, we will use reasonable efforts to direct the transferee to use personal information in a manner that is consistent with this Privacy Policy.

If you reside in the European Economic Area or Switzerland, you may opt out of some of the disclosures described in this section by contacting us as set forth below.

5. Retention and Integrity of Information

Company retains personal and non-personal information for as long as necessary to fulfill the purposes outlined in this Privacy Policy, and may retain it for a longer period of time if required or permitted by law.

You can request access, modifications to, or removal of the personal information collected by Company through your use of the Site by contacting Company using the contact point set forth below. To honor your request, Company will need the exact information you want to access, modify, or remove. Company will use reasonable efforts to provide you with access to and to modify or remove such information if requested, provided, however, Company will not be liable to you should it be unable, after such efforts, to identify, modify, or remove such information. Company may also decline requests that are unreasonable, require disproportionate technical effort, or that jeopardize the privacy of others. Due to the dynamic and ever-changing nature of the interactive portions of the Site, you acknowledge and agree it may be impossible for Company to access, modify or remove your personal information from these portions of the Site.

6. Children

Company is committed to protecting the privacy of children. Neither Company nor any of its services are designed or intended to attract children under the age of 13. Company does not collect personally-identifiable information from any person that Company knows to be under the age of 13, without prior verifiable parental consent.  A parent or guardian may revoke their consent and ask that information about their child be deleted from the site by contacting our offices via mail (see: address below) or email at [email protected]. To do this or to review personal information collected from children, we must verify the identity of the requesting parent. When a parent or guardian revokes consent, we will stop collecting, using, or disclosing information from that child. To respect the privacy of parents, information collected and used for the sole purpose of obtaining verifiable parental consent or providing notice is not maintained in retrievable form by the site if parental consent is not obtained after a reasonable time.

7. Security

Company has put in place reasonably appropriate physical, electronic, and/or procedural safeguards to protect your personally-identifiable information. However, even with such measures, no one is able to guarantee that unauthorized Third Parties will not be able to bypass these measures or otherwise capture such information. Company shall not be liable to you for any Third Party’s unauthorized access to or use of your personally-identifiable information.

8. Do Not Track

Company does not currently respond to web browser “do not track” signals or other mechanisms that provide a method to opt out of the collection of information across the networks of websites and Company Services in which Company participates.  If we do so in the future, Company will describe the process in this Privacy Policy.  Visit the website, “All About Do Not Track” at, for more information on this developing area.

9. Contact Points

Please contact Company to learn more about its privacy practices or to change your privacy choices:

CLL Society Inc.
1454 Melrose Ave.
Ste 1-247
Chula Vista, CA 91911
Message Line: (949) 667-4CLL
[email protected]