Caregivers Archives

March 1, 2023

The Impact of COVID-19 on Chronic Lymphocytic Leukemia (CLL) Caregivers and Their Resource Needs

Two years into the pandemic, CLL caregivers continued to cope with distress, live in isolation, and lose in-person care opportunities. They experienced increasing caregiving burden, shock, and devastation when a vaccine did not work for their loved one with CLL.

November 1, 2022

My Experience as a Caregiver for My Husband

I’ve never really thought about putting this role to paper but come to think of it, this may be a very therapeutic exercise for me. So here goes.

November 24, 2021

CLL Society’s Tribune Ask and Tell Survey: Patient & Caregiver Feedback

During the third quarter of 2021, CLL Society conducted a poll among readers of The CLL Society Tribune about the COVID-19 pandemic and treatment decisions, mental health challenges, and taking medication. There were 138 respondents.

November 24, 2021

Did You Know Q4 2021

Dr. Allison J. Applebaum, Associate Attending Psychologist in the Department of Psychiatry and Behavioral Sciences at Memorial Sloan Kettering Cancer Center (MSK), and Assistant Professor of Psychology in Psychiatry at Weill Cornell Medical College provided us with important statistics about caregivers that we are sharing with you below.

November 23, 2021

Joining the Journey

When my husband was diagnosed with CLL in September 2018, it was a surprise.

November 23, 2021

Don’t Call Me a Caregiver

By Nancy Simpson – “Supporter, Researcher, Cheerleader” My husband has CLL. One day he was fit and healthy. The next, he was not. At age 64 he was diagnosed with CLL. As with most diagnoses, this came as a complete surprise nearly 10 years ago. I can’t stand the

November 23, 2021

Life Is Good, Even With CLL

By Victoria Yasova – Caregiver It was five summers ago when we found out my husband had blood cancer, the kind for which we must “wait and watch”. As two people who always plan ahead and prefer to take care of things right away, the waiting without a plan

September 16, 2019

Operating Nurse and CLL

By Pamela Zeiler – Patient My story begins in June 2014. Within days after my daughter’s graduation from nursing school and my husband’s discharge from the hospital, I became very ill with C. Diff (clostridium difficile) colitis. Lab results indicated the presence of Chronic Lymphocytic Leukemia, a diagnosis bringing total

March 18, 2019

My Privilege

By Susan Chappell – Caregiver January 27, 2019 In the beginning When my loved one heard “you have cancer”, especially since there were no evident symptoms, I thought there must be a mistake. I wanted a do-over. Surely, they were wrong. Once his illness was confirmed, I watched helplessly

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Caregivers

The Impact of COVID-19 on Chronic Lymphocytic Leukemia (CLL) Caregivers and Their Resource Needs

My Experience as a Caregiver for My Husband

CLL Society’s Tribune Ask and Tell Survey: Patient & Caregiver Feedback

Did You Know Q4 2021

Joining the Journey

Don’t Call Me a Caregiver

Life Is Good, Even With CLL

Operating Nurse and CLL

My Privilege

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