CLL Society
WHAT’S NEW
Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.
We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.
COVID-19 Updates
Recurrent COVID-19 in Chronic Lymphocytic Leukemia
There’s a 21 percent chance of chronic lymphocytic leukemia (CLL) patients getting a second COVID-19 infection within a year of the first infection.
CLL Patients Recommended for Second 2024-25 COVID Vaccine
On October 23, 2024, the CDC recommended that those over 65 years old and those who are immunocompromised receive a second 2024-25 COVID-19 vaccine.
CLL Society’s Official Statement on Mask Wearing and Other Protective Measures for Those Living with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL / SLL) in Healthcare Settings
CLL Society has created our Statement on Mask Wearing and Other Protective Measures for Those Living with CLL to protect against respiratory infections spread.
Living with CLL
If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.
CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.
In Memory of Mark Silverstein
CLL patient Mark Silverstein passed away after his cancer turned to Richter’s transformation. His widow shared his unfinished reflection on his diagnosis.
Andrew Schorr and Dr. Brian Koffman Talk Clinical Trials and CLL
Andrew Schorr and Brian Koffman have been friends for almost two decades and both live with CLL. In a podcast episode, they recount their journey.
WHAT'S NEW IN CLL / SLL
It’s National Family Caregivers Month
During National Family Caregivers Month, we honor care partners and the essential support they provide to those living with CLL / SLL. Whether it’s offering emotional encouragement, helping with household tasks, taking notes at doctor appointments, and so much more, their contributions make a profound impact on the lives of patients. To all the care partners out there, THANK YOU for your dedication and compassion.
CLL Society has resources to support care partners, because your well-being matters too.
You Will Make 3X the Impact When You Give to Integrative Medicine Research in CLL
CLL Society is asking for your help in funding our 2025 Integrative Medicine in CLL Award. This initiative was first added to our Research Program in 2024. For the second year, your contribution will be MATCHED thanks to the generosity of CLL Society supporter Vigyan Singal.
In 2024, we funded two exceptional research projects in the integrative medicine discipline thanks to the generous support of our community. Christopher Jensen, MD, MSCR from University of North Carolina at Chapel Hill will be focusing his work on combating cancer-related fatigue, and John Byrd, MD from University of Cincinnati Cancer Center is working to gain a better understanding of the use of probiotics in CLL.
This year, Mr. Singal will provide $2 for every dollar donated to this project up to the amount needed to fully support the 2025 Integrative Medicine Research Award.
Funding for research in this area of comprehensive cancer care is limited from other sources; your support will make a powerful difference in understanding how integrative medicine practices can be used in CLL to improve patients’ quality of life.
ADVOCACY AND POLICY
CLL Society Discusses Changes Coming to Medicare
CLL Society held a webinar about upcoming changes coming to Medicare and Medicare Advantage plans in 2025, cautioning attendees to check their plans.
UPCOMING EVENTS
Friday, December 13, 2024 at 9 AM PT / 12 PM ET
Join CLL Society for the webinar Common Infections with CLL: Prevention and Treatment. As colder weather approaches and more time is spent indoors, the risk of respiratory infections like COVID-19, influenza, RSV, and bacterial pneumonia increases. Other infections to be aware of include infections affecting skin, gastrointestinal, and the urinary tract. Because everyone diagnosed with CLL / SLL are considered immunocompromised a variety of serious infections can occur.
On-Demand Replay
If you missed the recent webinar with Andres Chang, MD, PhD and Jacob Soumerai, MD, you can watch the full webinar, Immunity and CLL: It’s Complicated but Understandable.
If you missed the recent Q&A-style Facebook Live event “Ask Me Anything” with Dr. Richard Furman and patient advocate Jeff Folloder, you can catch the replay and find the transcript here! Watch now!
Treatment Updates
Progression-Free and Overall Survival Correlation in Relapsed CLL
There is a strong correlation between progression-free survival (PFS) and overall survival (OS) in relapsed / refractory (R/R) CLL / SLL.
Acalabrutinib and Obinutuzumab for Frontline CLL Treatment
Acalabrutinib plus obinutuzumab had a 100 percent response rate at 14 months and a deep reduction of disease in the bone marrow in treatment-naive CLL.
Become a Bone Marrow Donor and Save Lives of Those With CLL
The goal of the CLL Treatment Decision Tool is to increase your understanding of your chronic lymphocytic leukemia (CLL) and your treatment options.
Equitable Access and Regulatory News
Recurrent COVID-19 in Chronic Lymphocytic Leukemia
There’s a 21 percent chance of chronic lymphocytic leukemia (CLL) patients getting a second COVID-19 infection within a year of the first infection.
