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The World’s Leading Authority for Chronic Lymphocytic Leukemia Patients

CLL Society

WHAT’S NEW

December 10, 2023

Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.

We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.

COVID-19 Updates

Living with CLL

If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.

CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.

Update 7.75 Years – Captivate Trial

I am pleased to give a 7.75 year update.
I was first diagnosed in January of 2016. You can see my 3 year article update here. I unfortunately progressed quickly having large lymph nodes and my FISH test revealing 55% 17p deleted and trisomy 12.

SPECIAL FEATURE: The CLL Society YouTube Channel

CLL Society YouTube Channel

CLL Society has launched a YouTube channel! We are so excited about this opportunity to connect with our community in a new way and reach a wider audience of individuals impacted by CLL and SLL. The CLL Society YouTube channel will share engaging interviews with healthcare professionals, inspiring patient stories, and feature all our educational programs. 

Visit and subscribe to our YouTube channel to stay up-to-date on video content from CLL Society as soon as it is available!

 

ADVOCACY AND POLICY

UPCOMING EVENTS

Tuesday, December 5th at 9:30 AM PT / 12:30 PM ET

Join CLL Society and Dr. Veronica Dioverti as we discuss COVID-19, as well as RSV, influenza, and pneumonia. With colder weather and more time spent indoors, respiratory infections become a greater risk. We will review infection control measures, treatment options, vaccinations, and special precautions that are necessary to help mitigate risks for the immunocompromised. The presentation portion of this webinar will be brief, with the remainder of the event dedicated to answering audience questions. Learn more and register here.

On-Demand Replay

If you missed the recent webinar, Preventing COVID-19 and Other Respiratory Infections in Those with CLL / SLL During Peak Winter Months, you can catch the on-demand replay of here!

If you missed the recent Q&A-style Facebook Live Event, “Ask Me Anything” with Dr. Sameer Parikh and patient advocate Jeff Folloder,  you can catch the on-demand replay of here!

Watch Why Policy Matters – Understanding How Your CLL / SLL Journey is Affected to learn the importance of policy decisions for individuals with chronic lymphocytic leukemia and small lymphocytic lymphoma, CLL / SLL.

Treatment Updates

Equitable Access and Regulatory News

Pirtobrutinib is the First Reversible BTKi Approved in CLL / SLL

On Dec. 1, 2023, pirtobrutinib received accelerated approval from the FDA for chronic lymphocytic leukemia (CLL) and small lymphocytic lymphoma (SLL) patients who had failed two prior lines of therapy, including a BTK inhibitor (BTKi) and a BCL-2 inhibitor.