CLL Society
WHAT’S NEW
Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.
We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.
COVID-19 Updates
CLL Society’s Official Statement on Mask Wearing and Other Protective Measures for Those Living with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL / SLL) in Healthcare Settings
CLL Society has created our Statement on Mask Wearing and Other Protective Measures for Those Living with CLL to protect against respiratory infections spread.
FDA Says Do Not Use Cue Health COVID-19 Tests Due to Possible False Results
The US FDA warned home test users not to use the Cue Health’s COVID-19 Tests for Home and Over-the-Counter (OTC) Use due to increased risk of false results.
What the CDC’s COVID-19 Isolation Change Means for CLL Patients
Chief Medical Officer Dr. Brian Koffman was asked how the CDC’s proposed recommendation to cut COVID-19 isolation time will impact those with CLL.
Living with CLL
If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.
CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.
Albie Suozzi Talks Self-Care While Living with CLL
Albie Suozzi shares her journey with CLL, the things she has done to be intentional about her health, and the support she has gotten from CLL Society.
Veterans Benefits in CLL and Related Disorders
Now that most healthcare settings have lifted mask requirements, we must be active in asking for the protections we need and are entitled to.
WHAT'S NEW IN CLL / SLL
Doctors’ Education Improves When CLL Society Is Involved
Incorporating the patient voice into healthcare provider education has been shown to increase providers’ comprehension of the subject matter.
ADVOCACY AND POLICY
CLL Society Supports Annual CMS Report for “Smoothing” Program
CLL Society appeals to the Centers for Medicare and Medicaid Services (CMS) to include a report on implementation results of the new “smoothing” program.
UPCOMING EVENTS
Wednesday, August 7, 2024 at 9:30 AM PT / 12:30 PM ET
Join CLL Society for our webinar A Brighter Future for CLL: Learn How Your Legacy Can Have a Lasting Impact. Do you feel like you would like to do more to give back to CLL Society, but not sure what you can do to make a difference? August is National Make-a-Will month, and CLL Society will be taking this opportunity to share some helpful information on how easy and important it can be to leave a Legacy gift as part of your will or estate plan. Learn from CLL Society’s own planned giving expert and fellow CLL patient Ron Katz, and see if a legacy gift is right for you.
Thursday, August 29, 2024 at 9 AM PT / 12 PM ET
Join CLL Society for an informative and comprehensive webinar Immunity and CLL: It’s Complicated but Understandable covering the immune system and chronic lymphocytic leukemia (CLL). Drs. Soumerai and Chang will explain the complexities of CLL, its impact on the immune system, and strategies for managing associated risks including secondary cancers and common infections. They will discuss important prevention steps, screenings, and what we know about reconstituting the immune system.
On-Demand Replay
If you missed the recent webinar with Laura Zitella, NP and patient advocate Stephen Feldman, you can watch the full webinar, Treatment for CLL: When is the Right Time to Start?
If you missed the recent webinar with Dr. Mustafa and Robyn Brumble, you can watch the full webinar, COVID-19 in 2024: Recommendations and Strategies for Those with CLL and SLL, and read the transcript here!
Treatment Updates
Long-term Outcomes After Lenalidomide plus Rituximab for CLL
With the introduction of BTK inhibitors to treat CLL, there has been no disparity in survival outcomes for patients of different races and ethnicities.
Patient Preferences for Fixed vs Continuous Therapies in CLL
While a higher efficacy for the treatment is preferable, given equal efficacy, patients with CLL prefer fixed-duration over treat-to-progression therapies.
Comparison of Venetoclax-Based Treatments for CLL
Venetoclax-based combination therapies lead to durable remissions in patients with high-risk relapsed / refractory CLL.
Equitable Access and Regulatory News
RSV Vaccine Expanded to Those at Risk for Severe Disease
The US FDA expanded its approval of GSK’s RSV vaccine to individuals 50-59 years old with an increased risk of severe disease.
