CLL Society
WHAT’S NEW
Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.
We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.
COVID-19 Updates
CLL Society’s Official Statement on Mask Wearing and Other Protective Measures for Those Living with Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma (CLL / SLL) in Healthcare Settings
CLL Society has created our Statement on Mask Wearing and Other Protective Measures for Those Living with CLL to protect against respiratory infections spread.
FDA Says Do Not Use Cue Health COVID-19 Tests Due to Possible False Results
The US FDA warned home test users not to use the Cue Health’s COVID-19 Tests for Home and Over-the-Counter (OTC) Use due to increased risk of false results.
What the CDC’s COVID-19 Isolation Change Means for CLL Patients
Chief Medical Officer Dr. Brian Koffman was asked how the CDC’s proposed recommendation to cut COVID-19 isolation time will impact those with CLL.
Living with CLL
If you are a veteran, active-duty military, or a care partner and would be interested in joining a CLL Society Support Group for veterans / active-duty military, please complete this brief survey to indicate your interest in participating and help us identify the best time for meeting.
CLL Advocate Network (CLLAN), a global network of CLL patient organizations including CLL Society, surveyed nonprofits around the world to understand what support services and resources are offered to individuals impacted by CLL / SLL. The information collected was used to build a global resource hub. Patients and care partners can access the resource hub for free on the CLLAN website.
One Year Into My CLL Epcoritamab Trial, and All Is Well
One year after Dr. Brian Koffman enrolled as the first chronic lymphocytic leukemia (CLL) patient in the epcoritamab clinical trial, all is well.
Working with Specialty Pharmacies for Oral Drugs for CLL / SLL
Specialty pharmacies manage the care of patients on oral drugs for CLL and it’s important to understand their vital role in the current treatment of CLL.
WHAT'S NEW IN CLL / SLL
Your gift is being DOUBLED during Blood Cancer Awareness Month!
September is Blood Cancer Awareness Month, a valuable time to give recognition to those impacted by CLL / SLL, who often don’t receive the same level of attention as other types of cancer. Follow along with us on social media as we support patients and care partners navigating a CLL diagnosis.
This year, CLL Society’s Board of Directors is matching every donation received in September dollar-for-dollar up to a total of $17,500! Don’t miss the opportunity to make twice the difference for the CLL community and ensure no one has to face this diagnosis alone.
The First Episode of CareCast is Now Live
In the debut episode of CLL Society’s CareCast Podcast, Executive Director Carly Harrington sits down with our Founder, Dr. Brian Koffman, to discuss the emotional journey he has been through during the 20 years he has lived with CLL. During our conversation, Dr. Koffman reflected on the highs and lows of his experience and how building a strong support system has been invaluable to navigating complex emotions.
CareCast explores living with CLL through real-life stories from patients, care partners, and loved ones. We invite you to join us, as we are all in this together.
Find CareCast on Spotify and Apple Music, in addition to on the CLL Society website.
ADVOCACY AND POLICY
CLL Society Offers Input on the Medicare Drug Price Negotiation Program
CLL Society submitted comments to CMS for improvement to its draft guidance related to the Medicare Drug Price Negotiation Program (MDPNP).
UPCOMING EVENTS
Wednesday, October 16, 2024 at 11 AM PT / 2 PM ET
Join CLL Society for the webinar Getting the Most from Your CLL Treatment: Managing Side Effects and Knowing When to Stop. Dr. Michael Choi, a leading CLL expert, as he discusses how to optimize your CLL treatment. Learn about managing common side effects, strategies to help you stay on treatment, and when it may be time to stop or adjust your therapy. This session will provide practical tips and up-to-date information to help you navigate your treatment journey with confidence.
On-Demand Replay
If you missed the recent webinar with Andres Chang, MD, PhD and Jacob Soumerai, MD, you can watch the full webinar, Immunity and CLL: It’s Complicated but Understandable.
If you missed the recent Q&A-style Facebook Live event “Ask Me Anything” with Dr. Richard Furman and patient advocate Jeff Folloder, you can catch the replay and find the transcript here! Watch now!
Treatment Updates
Resistance Mutations with Acalabrutinib Treatment in CLL
Resistance mutations in BTK and PLCG2 are common in patients with CLL who progress on acalabrutinib, a BTK inhibitor treatment that is taken continuously.
Early Study of Experimental CAR-T Therapy for B Cell Cancers
An experimental CAR-T cell therapy made from healthy donor T cells is being tested in an ongoing phase 1 clinical trial to treat B Cell cancers.
Early Intervention with Lenalidomide in High-Risk CLL
Lenalidomide is an immunotherapy with promising efficacy for high-risk chronic lymphocytic leukemia (CLL). It appears safe with no increased infection risk.
Equitable Access and Regulatory News
RSV Vaccine Expanded to Those at Risk for Severe Disease
The US FDA expanded its approval of GSK’s RSV vaccine to individuals 50-59 years old with an increased risk of severe disease.
