CLL Society

WHAT’S NEW

December 2, 2022

Your connection to the most current news, information, and data about Chronic Lymphocytic Leukemia.

We suggest you BOOKMARK this page and visit it often. All content was current as of the date it was published.
In science and in medicine, information is constantly changing. Published content may become out-of-date as new information and data emerge.

COVID-19 Updates

Living with CLL

CLL Society is launching two Watch & Wait Support Groups to accommodate the high demand for this group. CLL/SLL patients and caregivers are welcome to join either group, which are named Eastern and Western based on time zone convenience.

Support Group?  Nah, Not for Me

I had always thought that a cancer support group was probably useful for some, but definitely not for me. Since my diagnoses of CLL/SLL about 11 years ago, my sole interest has been in getting information, current trends in treatment, potential new drugs, clinical trials, and trial results.

SPECIAL FEATURE: Giving Tuesday is Coming Next Week, November 29th

Being diagnosed with the cancer chronic lymphocytic leukemia/small lymphocytic lymphoma (CLL/SLL) and finding out it is incurable can feel like it will be unbearable. For Lynn, getting connected to the community of patients and caregivers with CLL Society made what felt unbearable, bearable. Finding people who are learning to navigate the same decisions you are making is not only comforting, but it can be lifesaving as you learn what treatments may be right for you. 

There are an estimated 200,000 people in the US living with CLL who are looking for answers sometimes only a fellow patient can provide. 

This Giving Tuesday, CLL Society has set a goal of raising $50,000 to provide those touched by a diagnosis of CLL/SLL with the support and education they need to get their best care. You can help those impacted by CLL find their community when you join us on November 29th and make a donation. 

Thanks to the generosity of an anonymous donor, all donations for Giving Tuesday will be matched up to $25,000! Visit the campaign page to listen to Lynn’s full story and make your gift today.

Donate Today

ADVOCACY

CLL Society Included in Pinpoint Patient Recruiting Giving Tuesday Giveaway

Giving Tuesday is coming up on November 29th. This year, Pinpoint Patient Recruiting is conducting a Giving Tuesday Giveaway on social media and has included CLL Society as one of the organizations they believe is making a difference in the lives of patients with CLL/SLL!

You can vote for CLL Society by liking, sharing, and commenting on posts from Pinpoint about CLL Society and help us win up to $3,000 towards our Giving Tuesday campaign to support all those living with CLL/SLL. Spread the word with family and friends and make sure your vote is in by Monday, November 28th at midnight.

CLL Society Sends a Comment Letter to the Centers for Medicare and Medicaid Services (CMS) 

CLL Society voiced strong support of the CMS proposal to continue the existing policy to pay for COVID-19 monoclonal antibodies and their administration (such as Evusheld) under the Part B vaccine benefit. 

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UPCOMING EVENTS

Monday, December 5, 2022 at 10 AM PT / 1 PM ET

Ask Me Anything Facebook Live Event
Join Dr. Nicole Lamanna and CLL patient advocate Doreen Zetterlund for CLL Society’s next Facebook Live event. With no prepared presentations, this is a time dedicated to getting the questions you have answered.

Register Now

On-Demand Replay

If you missed the November 16th CLL Society Ed Forum focused on CLL basics, watch & wait, and an overview of treatments from Huntsman Cancer Institute team and patient advocate Stephen Feldman, you can catch the replay of the 6th Annual Patient & Caregiver Ed Forum here!

Treatment Updates

Equitable Access and Regulatory News