Stories and Testimonials Archives

March 11, 2022

CLL/SLL Patient Journey

Mark Hoffman shares his CLL journey from diagnosis to participating in a clinical trial as a frontline treatment and his current remission.

February 21, 2022

Margaret wrote this heart-wrenchingly honest and lucid account of her young husband’s passing soon after his chronic lymphocytic leukemia (CLL) went bad and transformed to Richter’s Syndrome or Transformation. Not everyone who develops Richter’s has such a grim story, but sadly too many still do.

February 16, 2022

Surviving Chernobyl: The Incredible Story of Dr. Yan Leyfman

While not a CLL story, Dr. Yan Leyfman is one of the few survivors of radiation poisoning from Chernobyl in the former Soviet Union. He shares his amazing story about his family’s advocating for his care, including leaving his homeland to get medal care.

February 14, 2022

Tribute to Tom Henry

We lost a CLL friend, advocate, and scholar to COVID-19. I am heartbroken and not sure where to start my personal tribute. Tom Henry was a special person, active in multiple forums, extraordinarily generous in sharing his wisdom as a pharmacist, faith, and hard-earned experience as a CLL patient.

February 9, 2022

CLL and COVID-19: Uncharted Waters

These are indeed uncharted waters. There is the obvious risk of ventilators and death with everyone we encounter a possible unwitting carrier of the virus. For those of us who are both older and immunocompromised, there is a psychological element to all this that is underestimated.