CLL Society Educational Forums

CAR-T Ed Forum: The Basic Science and Latest Data on April 21, 2021

10:00 AM PT, 11:00 AM MT, 12:00 PM CT, 1:00 PM ET

Please join CLL Society as we continue to strengthen your learning about CAR-T. Dr. John Pagel will bring the beginner up to pace with what CAR-T therapy is, how it works and where the science is leading. Dr. Tanya Siddiqi will present current data on the success of CAR-T therapy CLL, with and without ibrutinib. Dr. Larry and Sharon Saltzman will share their CLL CAR-T journey from the doctor-turned-patient and caregiver’s points of view. Learn more and register here!

Past Events:

On Feb. 4, CLL Society hosted ASH 2020 Comes to You! Dr. Anthony Mato discussed LOXO-305, updates from the inform CLL Registry, which confirms CLL Society’s Test Before Treat™ campaign, the impact of del(17p) survival of CLL patients with ibrutinib frontline, and a one-pill triple combination targeting Richter Transformation. Dr. William Wierda discussed the TRANSCEND Study: Liso-cel (JCAR017) in combination with ibrutinib, as well as present data from the MRD Cohort of the CAPTIVATE Study. View this event On Demand here!

On Nov. 17, CLL Society Virtual Patient & Caregiver Educational Forum with Dr. Deborah Stephens at Huntsman Cancer Institute was a great learning experience for all. In both her research and her clinical practice, Dr. Stephens is known to be particularly sensitive to the issues that are of importance to patients during their CLL journey. Our Instant Replay of Dr. Stephens and her team at Huntsman, partnering with CLL Society again this year to host a well-rounded joint effort to cover the basics of CLL diagnosis, early management, clinical trials, treatment options and patient perspectives. View the Ed Forum On Demand HERE!

CLL Society hosted a Global Virtual Patient & Caregiver Educational Forum on Saturday, October 10 with faculty from across the country. Can’t miss topics from CLL experts will include early management in CLL, Test Before Treat, frontline therapy options, measuring response, clinical trials, CAR-T, vaccines, Richter’s Transformation, and more! Also patients and caregivers spoke about being your own advocate and the value of joining support groups. View the Ed Forum On Demand HERE!

About the Forums

These forums have a duration of approximately 4 hours, during which CLL patients and their caregivers receive cutting-edge education about CLL from a speaker panel which is comprised of CLL experts as well as patients and caregivers relating their experiences. We also invite various local representatives to share information about their local resources and programs; this includes CLL Society Support Group representatives and often representatives from LLS and/or the hosting medical institution, when applicable. A generous amount of time is allotted throughout the event for patient and caregiver questions.

We begin our programming late in the calendar year and extend it into the first half of the following year so that late-breaking research from the American Society of Hematology (ASH) Annual Meeting can be presented.

Each Forum is Unique:

Each CLL Society Patient and Caregiver Educational Forum is unique, featuring a different CLL expert physician speaker at each Forum, while highlighting local research, services, and available trials. We encourage you to attend more than one Forum if you’re able. Likewise, you can check out our archived recordings, and maximize your experience!

Participant Feedback

Attendees of the 2018-2019 CLL Society Patient & Caregiver Educational Forums were invited to complete a survey. Among the results:

99% of respondents rated the overall value of the meeting as Good or Excellent.
97% of respondents agreed or strongly agreed that they learned new information they would share with their physicians.
99% of respondents agreed or strongly agreed that they are now more aware of reliable sources of information about CLL.
96% of respondents agreed or strongly agreed that they now feel more connected to the CLL patient and caregiver community.

On Demand

Selected 2018-2019 Patient & Caregiver Education Forums are available on demand now!

CLL Society Patient Education Forum at the National Institutes of Health, April 5, 2019

CLL Society Patient Education Forum at City of Hope, February 9, 2019

Updated August 24, 2020