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Ask & Tell Q2 2019 Survey Results

In science and medicine, information is constantly changing and may become out-of-date as new data emerge. All articles and interviews are informational only, should never be considered medical advice, and should never be acted on without review with your health care team.

Q2 Reader Poll Results: Shared Decision Making

During March through June 2019, the CLL Society conducted a poll among readers of The CLL Society Tribune. There were 84 complete responses with 94% of the responses from patients and 6% of the responses from caregivers. The respondents included 60% who are receiving treatment and 40% who are not yet receiving treatment.

Shared Decision Making (SDM) is a patient-centered approach that keeps the patients’ values and preferences front and center. We asked our readers’ the following questions to determine their familiarity with the approach and their participation in the practice.

Are you familiar with Shared Decision Making

Our survey tells us that 52% respondents were not familiar with Shared Decision Making (SDM) and 48% are familiar with this approach. The majority of respondents who are not familiar with SDM were interested in learning more.

role in shared decision making

50% of the respondents proactively research treatment options in addition to listening to the options provided by their doctors. People who responded “Other” also stated that they discuss decisions with their family; decisions are made 50/50 with their doctor; or they are on watch and wait and not yet in treatment.

active participant?

The majority of respondents feel they are an active participant in decision making about their CLL treatment.

Finally, we asked respondents to answer the following question:

When having made or should I need to make a shared medical decision,

benefits and risks

most important benefits and risks

i have enough support

Certain about my ability to make a choice

The majority of respondents understood the risks of options provided to them and which risks and benefits are important to them. Respondents feel they have support to make the best decision for themselves.

Originally published in The CLL Tribune Q2 2019.